Hi!!! My name is Meagan, and I'm a Carolina Girl, Clemson grad, skate mom, nurse and Lupus Warrior!!!! Several years ago I was diagnosed with an autoimmune disease called Mixed Connective Tissue Disease which is an overlap disease that has symptoms of Lupus and Rheumatoid Arthritis. Over the past 3 years, I have been on a journey of hundreds of doctor visits, lab tests and chemo injections and infusions. Last May, my disease process progressed and decided to declare itself as Systemic Lupus Erythematosus. This means that my own immune system is attacking the healthy cells in my body causing me to lose my hair, have horrible rashes, sun sensitivity, chronic and debilitating pain and exhaustion most can't imagine, migraines, ulcers in my mouth, nose and scalp, insomnia, and chest pain to name a few.
Thanks to the millions of dollars raised through the Lupus Foundation of America, the first FDA-Approved drug to treat Lupus was released. I was a candidate for the Benlysta, so I started the infusions then. Things were getting better for a while, but I have had some major setbacks in my health since the fall. This "wonder drug" has stopped working, and I found out yesterday that the Lupus has now started affecting my kidneys.
Lupus is a chronic disease. Currently, there is no cure! For those of us who have it, we face the reality that this will likely be the reason our bodies fail us one day. Treatments and prognoses have gotten better over the years, but this horrible disease still kills! Imagine taking chemotherapy every day for the rest of your life! There are about 1.5 million with Lupus in the United States today facing that threat. I am one of them! I will likely have to continue on this treatment plan for the rest of my life unless we find a cure!!!
On Saturday, May 6, 2019, I am walking for myself and for all of the other Lupus Warriors like me to fight for a cure!!! Join me as I participate in Lupus Foundation of America’s Walk to End Lupus Now, 5k Run & Yoga - Houston to raise critical funds for those in our country with Lupus. I'm not going down without a FIGHT!!!!
Will you make a donation to help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by Lupus? A generous contribution of $25 or $55 can make a definite impact. What’s more, if your employer offers a Matching Gift Program to employees, you may be able to double your contribution with just a little bit of paperwork. Trust me, it’s worth the effort! Every single dollar counts!
If you are in the Houston area, I would really LOVE for you to join me in walking / running. Zoe & Brent will be running. Please think about joining my team. We would love to have you. Our team name is "Carolina Dreamin." It would be great to have those that mean the most to me by my side as I fight this dragon! Any support is appreciated!!!
Did you know?
- Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
Together, we can solve the cruel mystery of lupus. Thank you for your generosity!