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For those of you who don’t know, lupus is a disease in which the immune system goes into over drive and begins to attacks its own organs. I was diagnosed with systemic lupus erythematosus in 2018 after many tests and a long journey ruling out any other possible reasons my health began randomly declining. Lupus has taken from me, but it has also given me strength that I didn’t know I had.
My diagnosis has taught me to appreciate some of the things that a “healthy” person might take for granted. I am grateful that I wake up everyday and have a new start to leave my mark. I am greatful for a family who supports me and refuses to let me fight alone. You all are my reason to keep going.
I take my handful of medications every day and pray that it’s enough to keep my disease from spreading further into my organs. I pray that I’ll have the energy to make it through the day without needing to back out on the plans I made with my friends the day before. I pray that my friends and family don’t get mad at me when I do need to just stay home. And I pray that one day I won’t have to take this medication and I can be one of the the lucky ones who see someone find the cure.
There are others who have stories much darker than mine. There are patients who cannot get around without assistance, who deal with this on their own, who have experienced serious organ involvement or other severe complications, and there are some who’s lives have been cut short because of a disease that can take and take until there is nothing left.
Walk with me, hold my hand, and pray that one day a cure will be found. Pray for the families that are fighting for their loved ones. Pray for the warriors, getting up everyday and continuing to face this disease head-on.
“You never know how strong you are until being strong is the only choice you have.”
I am more than my lupus.
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