Walking/ Donating to End Lupus. Join Me?
I was diagnosed with SLE Lupus in 2012. It has been journey of ups and downs and twists and turns. Appointments with many specialists, trial periods on many different drugs and an amazing holistic journey as well. I’ve learned so much about myself and my health. What to do and what not to do. It has been an emotional roller coaster that has brought out courage and strength I didn't know I had. Dealing with a disease like Lupus is unpredictable and stressful. You can have a good day and by the evening be bedridden for a week. The financial side is extremely stressful. My medications alone cost me several hundred dollars a month and that doesn’t include $50 a specialist visit (i have several specialists that I see at least every 3 months if not more.) I am a single mom, doing my best to survive on a very small income.
The first 5 years of diagnosis were extremely tough. I had no idea how to live with this disease. I was in extreme pain, depressed, scared and honestly felt alone. I worked for a while until I just couldn’t anymore. I was deemed disabled a few years later. In 2016, 2 months after separation from my husband at the time, I was hospitalized for lupus induced pancreatitis, kidney stones, and a double kidney infection. I was heartbroken, hurting, scared, and stressed beyond belief.
After a week in the hospital, I knew I had to make a change. My circumstances were not what I had hoped but they were my reality. So, instead of giving up, I took charge of my health, worked extremely hard and eventually built my strength back up. I went from barely being able to walk half a mile to jogging then running. I ran consistently for about 3 years, but January of 2020, I fell and i haven’t been able to run the same since...
Then Covid happened! Talk about a stressful challenge. My body definitely suffered this last year, I have begun to lose my hair in massive amounts every day, along with other symptoms like Rashes, swollen joints, skin aches, muscle burning, easy bruising, chest pain, extreme bouts of nausea, migraines, extreme fatigue (well, I'm always exhausted), and anxiety have become great challenges again.. BUT, I AM NOT BEDRIDDEN and for that I am GRATEFUL! I have begin to slowly but surely turn things around!
I will not give up! Jesus Christ has been my peace, comfort and strength through all of this!! In Him, I continue to fight each day for my health! I will continue to advocate and educate others on this horrific disease until we find a cure. I look forward to one day being able to say I used to have Lupus!
Lastly, I am so blessed to have a son that fights with me and for me!!! He is my “Why!”
So I'd like to give a huge shout out to AJ, my dude, who has done more for me than I could ever put into words and I am so grateful for him and his life!
So, I ask please, could you donate to help find a cure? Any amount will help!! AJ and I would love to have you walk virtually with us on October 16, 2021! It would mean the world to us!!!!
Thank you for taking time to read part of my story!!!! Xo