I’m Walking to End Lupus. Join Me?
I was diagnosed with SLE Lupus in 2012. It has been journey of ups and downs and twists and turns. Appointments with many specialists, trial periods on many different drugs and an amazing holistic journey as well. I’ve learned so much about myself and my health. What to do and what not to do. It has also been an emotional roller coaster that has brought out courage and strength I didn’t know I had. Dealing with a disease like Lupus, you never know how you will feel. You could have a good day and by the evening be bedridden. Mental strength has been a life saver for me.
The first 5 years of diagnosis were extremely tough. I had no idea how to live with this disease. I was in extreme pain, depressed and scared and honestly felt alone. In 2016, 2 months after separation from my husband at the time, I was hospitalized for lupus induced pancreatitis, kidney stones, and a double kidney infection. Stress is a HUGE trigger and I was already so sick, so it didn’t take much to send my body over the edge. After a week in the hospital, I took charge of my health, worked extremely hard and eventually built my strength back up. I went from barely being able to walk half a mile to jogging then running. By 2017 i was running a few times a week and here it is 2020 and I’m still running!
Every now and then I flare. Rashes, swollen joints, skin aches, muscle burning, easy bruising, chest pain, extreme bouts of nausea, migraines, extreme fatigue (well, I’m always exhausted), and anxiety every now and then. BUT, I AM NOT BEDRIDDEN and for that I am GRATEFUL!
I will continue to fight each day for my health and I will continue to advocate and educate others on this disease! So, I ask please, could you donate to help find a cure? And AJ and I would love to have you walk with us on May 2, 2020! It would mean the world to us!!!!
Thank you for taking time to read part of my story!!!! Xo