Our Sweet Elaina's Story
Elaina Murguia Starnes, Lupus and The Walk to End Lupus Now Fayetteville holds a very special place in my heart. In August 2005 I was suddenly struck down by a diagnosis of SLE Lupus Cerebritis. It was the first month of my senior year in high school, supposedly the best years of my life. I initially spent four months in UNC Chapel Hill Hospital following numerous hospital stays, treatments and surgeries in the following years since diagnosis. Throughout my recovery process I had to relearn how to read, write, and walk among other things from the ground up. I have been placed on numerous medications, as well as several different treatments including six months of chemo therapy. Along the way I have learned that Lupus is a roller coaster that will definitely take you and everyone around you for a ride, sometimes you have to hold on tight when you're afraid and just know that the ride will soon slow down and there will be someone close helping you every step of the way. I truly believe in the saying "you really don't know what you're truly capable of until your whole world changes in the blink of an eye." Lupus has made me into a better person and brought out strengths I never knew existed. (What is essential is truly INVISIBLE to the eye) I've also learned "not to sweat the small stuff!" Lupus has shown me how much love, strength dedication, determination; motivation and heart loved ones have for people with a disease, because it is a constant full-time job.
My reason for participating in and helping to organize the annual Walk To End Lupus Now Fayetteville, in my home town is to spread awareness, raise funds for critical research and to help build a true Lupus community in Fayetteville and surrounding areas. People that have been affected by Lupus in some way or another have a special bond and are family. Every day we gain many newly diagnosed family members!
I'm walking because I want to do something for the people who have been diagnosed and because I want to do everything in my power to prevent more people from learning what it means to live a life with Lupus. On April 4, 2020 come unite, walk, support and help make a difference in not only your life but the lives of others! The smallest steps can make the world of difference.
Together, we can solve the cruel mystery of lupus. Join our team today and support our efforts!
Imagine a day when doctors can say, “There is a cure for lupus.” Until that day though, there is work to be done. That’s why I’m taking action in the fight against lupus. Join me as I participate in Lupus Foundation of America’s Walk to End Lupus Now™ in Fayetteville to raise critical funds for the estimated 1.5 million people living with lupus in the United States.
Will you make a donation to help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by lupus? A generous contribution of $25 or $55 can make a definite impact. What’s more, if your employer offers a Matching Gift Program to employees, you may be able to double your contribution with just a little bit of paperwork. Trust me, it’s worth the effort! Every single dollar counts.
Did you know?
- Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.