This is my 6th year fundraising for such a great cause! Join me as I participate in Lupus Foundation of America’s Walk to End Lupus Now™ in Charlotte to raise critical funds for the estimated 1.5 million people living with lupus in the United States.
Being a part of the Lupus Foundation of America, North Carolina chapter has allowed me to meet some great people and get the support and resources I need. They provide support for thousands of people with Lupus living in North Carolina. They are a small but mighty office that offers research summits, support groups in multiple areas, patient support and so much more. All the money donated goes to making sure services can be provided to patients and to lupus research. Personally, I have been on the walk committee for three years in NC and 1 year in TX. I am always appreciative of all the hard work this group does for people like me.
How to get involved:
- Join my team! Fundraise online
- Donate individually to Aileen's personal page (http://chapters.lupus.org/site/TR/WTELN/LFANorthCarolinaChapter?team_id=6463&pg=team&fr_id=1532)
- Looking to host an event: Would you like to host a restaurant fundraiser? Want to host a fundraiser at your church? Want me to come to your school/organization? I am always looking for new ways to spread the word about Lupus. It's important to educate others on Lupus and I am happy to come out to events to speak and mingle. Feel free to send me an email or call me with your ideas! (Yes, I am happy to travel to other cities)
- Offline Donations: Many individuals prefer to send checks directly to the Lupus Foundation of America, NC Chapter. You can totally do that! Contact me for details.
- Share, Share, Share: You can share my link on Facebook. You can share my emails with others who might be interested. We need to get the word out together. Choose a method of support that feels comfortable for you!
- Prior to 2011: isolated incidents of broken bones, cysts and illness
- December 2011: Beginning of skin rash which was originally thought to be Hives
- July 2012: Rash still had not gone away and was getting worse. A skin biopsy confirmed an autoimmune related rash
- October 2012: Rushed to the Er for a hemoglobin level of 5. Spleen was destroying my red blood cells.
- November 2012: First trip to the rhuematologist
- February 2013: Diagnosed with Lupus
- May 2013: Gallbladder and Spleen removed
- November 2013: Kidney Biopsy revealed Lupus Nephritis stage 3 and 5
- December 2013: Internal bleeding from Kidney Biopsy
- February 2014: 1st surgery for fluid accumulation in Heart and Lungs
- April 2014: 2nd surgery for fluid accumulation in Heart and Lungs
- April 2014: Surgery for infection caused by previous surgery
- May 2014, November 2014, May 2015, November 2015, July 2016, February 2017, August 2017: Chemotherapy
- January 2017: Blood Clots in the lung
- October 2017: Lupus Flare (dizziness, uncontrolled Lupus Nephritis, fatigue)
- August 2018 - November 2018: Flare, with heart complications, two sessions of chemotherapy
Together, we can solve the cruel mystery of lupus. Thank you for your generosity!