2017 Walk to End Lupus Now, Austin Area

Hope on the Move

Welcome to our fundraising team page.

For the past few years our daughter Janae has struggled with so many health issues. She was sick about every 4-5 weeks and would miss about 2-3 days of school every round! She has been constantly in and out of the doctors offices. Given blood, urine samples, MRI's, Neuro tests, heart tests, so many tests!!! We moved to Texas in 2016 thinking it would help her stay a bit more healthy without all the rain and moisture. Well it helped for a little bit but she still struggled with different symptons and was still missing school, going to the doctors, taking more tests! Well on May 25th 2017 Janae was diagnosed with Undifferentiated Connective Tissue Disease, which in real words means Lupus. After doing so much research on Lupus, we are very lucky and thankful that Janae's case is mild although when she is having an episode it still sucks! We have gained so much respect for parents who deal with children with diseases. It's the hardest thing ever to deal with when your child looks up at you with such sadness in their eyes and says why do i always have to be sick. Despite this ugly disease Janae deals with, she remains a happy, sweet, kind young girl. We couldn't be prouder of the young lady she is becoming. She does well in school and just joined a tumbling class. Janae has one of the biggest hearts and we are so blessed. We are praying for positive outcomes for Janae and the rest of her life. Praying this Lupus stays as mild as it can. We have a strong support system so we are very thankful for that as well. 

If you are so inclined to donate to our team, we would love it. But most importantly keep Janae in your prayers! Oh and by the way, Isiah her brother thought of our team name!! 


Imagine a day when doctors can say, "There is a cure for lupus". Until that day though, there is work to be done. That's why we are taking action in the fight against lupus. Join us as we participate in the Lupus Foundation of America's Walk to End Lupus Now! in [city] to raise critical funds for the estimated 1.5 million people living with lupus in the United States.

Will you join our team and help us reach our fundraising goal? You’ll be supporting the Foundation's efforts to improve the quality of life for all people affected by lupus. You can also support by making a secure contribution on our walk page. Every single dollar counts!

Did you know?

  • Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
  • Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
  • While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk. 
  • Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.

 

Together, we can solve the cruel mystery of lupus. Join our team today and support our efforts! 

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