WELCOME TO CHANGE
Welcome to our team donation page! Part of the battle is making people aware of what Lupus actually is and how it affects people who have it. Below are some facts about Rachel's Systemic Lupus and Lupus in general.
Please feel free to click on the link to the right to donate. 100% of donations will be going to Lupus research and treatments so that one day we can find a cure, and that one day can be sooner than we think.
Some facts about Rachel's Lupus:
- I have Systemic Lupus (SLE), which is a type of Lupus that can affect your organs. Luckily, mine has not reached any of my major organs. (Yes, this is the kind of Lupus Selena Gomez has - soul sisters.)
- My Lupus mostly affects my skin and joints. I also have Raynaud's Disease and Thyroiditis, which is often paired with Lupus.
- My triggers are the sun and stress, so if I stay exposed to the sun for too long or get too stressed I will feel fatigued and, in more serious situations, I will have a flare which causes all of my joints to go into extreme pain. This hasn't happened for about 6 years now so I'm extremely grateful for that!
- I was admitted into the ER during my last flare-up, and due to the lack of treatment for Lupus, all they could do was give me morphine and steriods, which helped the pain but did not actually treat my condition.
- There is no specific treatment or medication for Lupus, but it was found that pills designed for Malaria also help to suppress Lupus symptoms. I have been on these pills for 7 years now and they help to manage my symptoms. On a daily basis, I only have to deal with the fatigue and Raynaud's, and for that I feel very lucky!
General Lupus Facts:
Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
Together, we can solve the cruel mystery of lupus. Thank you for your generosity!