Welcome to our fundraising team page.
The physician explained, “it’s not easy diagnosing someone with Lupus; it is like putting together a puzzle”.
Hello, my name is Sandra.
I still remember those words; even after 20 years of living with this chronic disease. I received my confirmed diagnoses in 1997, after what seemed like an endless array of blood draws, tests and examinations. I recall not being afraid, because lupus was a mystery disease and I had never heard of it. The diagnoses gave a name to my joint pain, extreme fatigue, facial rash and body aches, but there were still so many unknowns.
Over the years, I realized the puzzle was not necessarily in the diagnoses but possibly in how I dealt with the disease. Lupus forced me to make changes; to cope with the physical limitations, manage my medication schedule and be alert to the occasional flare-up.
I think each of us has our own personal Lupus puzzle, and it certainly takes time to decide where to place the pieces. However; the two things we all have in common is the need for knowledge and for support.
The people I have meet over the years have had a profound effect on my wellbeing. The knowledge and the stories helped me to understand that I will have good and bad days but I should stay positive, keep smiling and manage my disease, and never let the disease manage me.
Imagine a day when doctors can say, "There is a cure for lupus". Until that day though, there is work to be done. That's why we are taking action in the fight against lupus. Join us as we participate in the Lupus Foundation of America's Walk to End Lupus Now! in San Antonio on April 6, 2019 to raise critical funds for the estimated 1.5 million people living with lupus in the United States.
Will you join our team and help us reach our fundraising goal? You’ll be supporting the Foundation's efforts to improve the quality of life for all people affected by lupus. You can also support by making a secure contribution on our walk page. Every single dollar counts!
Did you know?
Together, we can solve the cruel mystery of lupus. Join our team today and support our efforts!