I’m Walking to End Lupus. Join Me?
Imagine a day when doctors can say, “There is a cure for lupus.” Until that day though, there is work to be done. That’s why I’m taking action in the fight against lupus. Join me as I participate in Lupus Foundation of America’s Walk to End Lupus Now™ in San Antonio to raise critical funds for the estimated 1.5 million people living with lupus in the United States.
Lupus is chronic disease that is impacting my life and the lives of my loved ones. Please read my store below.
Imagine being told that you have a clotting disorder called Lupus Anticoagulant that requires Lovenox injection every time you fly. By the way the injections are in your stomach….not fun! This diagnosis was in September 2009, I was 39. With all my work travel my stomach was sore some of the times because I did not do the shots properly and developed hematomas on my stomach. Because of my faith and my family support, I did not let this diagnosis slow me down or stop me from living. It was just one more tool that God gave me to be stronger in my walk as He continued to write my store.
Now let’s fast forward to March31, 2017. This is the date my Rheumatologist called and said the words I did not want to hear, you have Systematic Lupus Erythematosus (SLE). All I heard was I had lupus. I knew in the back of my mind for months that I probably had this chronic debilitating disease, but I just didn’t want to hear the words officially. All the signs were there, fatigue, joint pain, unexplained loss of my low frequency hearing, ringing in my ears and the list goes on. Because of my Lupus Anticoagulant diagnosis, I knew this day would come but I was praying it would pass me by. Unfortunately, that was not the plan for me. Once again, my faith, the love of my husband and family got me through the shock of the diagnosis and the fear of what’s ahead.
The first year was not to bad but the second year tested me in ways I never imagined. Then 2019 came along, this was the year my fatigue and joint pain was unbearable at times. I could be in the bed for an entire day and I was still tired, plus my joints were swollen and painful. I was having trouble standing, walking and there were days that I could barely make a fist because the joints in my fingers were so swollen and tight. This led to more pills and blood work every three months to monitor the sediment count in my body and my blood count. After trying different medication, we were able to find a cocktail that was starting to work for me. Then July 2019 came along and brought along a game changer.
I started to have bad chest pains in July 2019. The pain never radiated into my left arm but wow……it was painful at times. Until my cardiologist could get a clear understand on what was going on, he gave me a script for nitroglycerin. Yes, at the age of 48 I had to take these pills because the pain in my chest was painful and paralyzing at times. As I went through several test, I was beginning to feel less and less like me. To be honest, I did not think I was going to make it. My cardiologist wanted to rule out any possibility of blockage so, he performed a Left Heart Cath. And the results were negative for blockage so, it was finally determined that my lupus was the cause of my chest pain / heart problems. In order to protect my heart, I’m currently on two different medications.
Now let’s fast forward pass my heart issues. My sister-in-law, Stephanie started to do some research and came across a book called Goodbye Lupus by Dr. Brooke Goldner. She knew I was opened to trying something besides medication because I wanted to get well and feel like me again. So, she had the book sent to me. Everything I read in the book made since, I just had to apply it. It was nothing dangerous, I just had to change my eating habits. With the guidance of the book, Stephanie’s research as well as her guidance / help, I’m starting to feel like me again.
It’s a process that takes time, but I see light at the end of this chronic disease tunnel. So, for now the medication and my eating habits is helping. I’m hoping to tell you one day that the changes in my eating habits has put this chronic disease to rest. Regardless how my journey ends, it is important we continue to raise money and educate ourselves, our families and friends on what this chronic disease is and how it can impact our lives as well as the lives of our loved ones.
Thank you all for your support and love!!!
Please make a donation to help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by lupus. A generous contribution of $25 or $55 or $100 can make a definite impact. If your employer offers a Matching Gift Program to employees, you may be able to double your contribution with just a little bit of paperwork. Trust me, it’s worth the effort! Every single dollar counts.
Did you know?
- Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
Together, we can solve the cruel mystery of lupus. Thank you for your generosity!