In 2003, I was diagnosed with Lupus (Systemic Lupus Erythematosus). The diagnosis took years of doctor visits, various illnesses, and body pain. I was provided a basic medication regiment and continued follow up visits to manage the issues.
In May 2009, I was hospitalized for nearly a month. It took over a week of 104+ degree fevers, seemingly endless tests, and even intubation and a week in the ICU for doctors to finally believe I was having a severe Lupus flare up. I left the hospital with a more concrete illness management plan and continued follow ups.
In May/June 2018, I was hospitalized for 2 weeks because of an uncontrollable fever. Endless tests, biopsies, and specialist visits determined that the doctors could not fully figure out why I was sick. Doctor consensus was that it was, once again, *likely* a severe Lupus flare up.
My medical history isn’t to make you feel sorry for me. I’m actually quite lucky. While I still play sports, live an active life, and continue with normal daily activities, some Lupus patients struggle to even get out of bed in the morning.
What's probably noticeable is that, for over 15+ years and while knowing my full medical history, doctors still struggle to even diagnose me with an “actual” Lupus flare up. I take immunosuppressant and anti-malarial medications because only one Lupus specific drug (Benlysta) has been approved for the disease in over 50 years. Little is known about how one “gets” Lupus, how it is going to affect the body, or any long-term issues to anticipate. Each year new symptoms and Lupus related reactions seem to creep into daily life.
That’s why we all need your help. Money and awareness do not solve all of the issues, but it will help administer and push more scientific studies to find a cure for Lupus, as well as, help create a resource network for patients around the country. I hope you join me and thousands of others in supporting the Lupus Foundation – Lone Star Chapter’s Walk to End Lupus Now.
Please donate and/or join me and team “Kickin’ Lupus Out This Joint” on April 4th!
We plan to print up some cool t-shirts, too!
I’m Walking to End Lupus. Join Me?
Imagine a day when doctors can say, “There is a cure for lupus.” Until that day though, there is work to be done. That’s why I’m taking action in the fight against lupus. Join me as I participate in Lupus Foundation of America’s Walk to End Lupus Now™ in [city] to raise critical funds for the estimated 1.5 million people living with lupus in the United States.
Will you make a donation to help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by lupus? A generous contribution of $25 or $55 can make a definite impact. What’s more, if your employer offers a Matching Gift Program to employees, you may be able to double your contribution with just a little bit of paperwork. Trust me, it’s worth the effort! Every single dollar counts.
Did you know?
- Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
Together, we can solve the cruel mystery of lupus. Thank you for your generosity!