I’m Walking to End Lupus. Join Me to Help Find a Cure!
The First Years
It was the summer of 2000 when I first started experiencing symptoms. I was sick on and off that entire summer and my fatigue only worsened as soon as the school year started. Through months of doctor visits, labs, specialist after specialist, and finally a biopsy on my kidney, it was confirmed and, at the age of 11, I was diagnosed with Lupus and my life began its journey down a different path. I remember the moment my parents told me. I put on a brave face but excused myself to go to the bathroom and instead went to cry alone in the hallway where my parents came to find me only minutes later. It was completely, wholly devastating. Within a week or two of my diagnosis, I started monthly chemotherapy treatments in combination with a heavy daily dose of prednisone that I continued for roughly 3 years. My childhood quickly warped and I was forced to adjust to my new day to day. No more sports, daily medications, and thanks to the steroids, daily blood sugar checks when I developed steroid induced diabetes. The treatments took it out of me and over time I lost much of my muscle tissue and was left with stretch marks over various parts of my body and the inability to do physical things on my own. Over the years I tried multiple other treatments searching for the one that would give me relief and stabilize my Lupus. All those years put me through a lot of pain and emotional distress and it was an extremely difficult time for my entire family but I maintained my happy face and positive attitude thanks to the tremendous support and advocacy on my behalf from my parents.
Looking back at these past 18 1/2 years since my diagnosis, I’m incredibly lucky to say that my health is in a better place now. I have my good days and my bad days and it all comes and goes in waves but I know it could be so much worse and I’ve gone through the worse and know it well. My greatest hope is finding a cure for Lupus so those of us suffering can have an end to our pain and struggles.
Please join me on April 20th as we walk in solidarity of all those suffering and in memory of those who lost their battle with Lupus. Your support means the world to me, whether you’re walking beside me or simply making a donation in my name. Every single dollar counts and gets us closer to our hope of one day being cured of this horrible disease we call Lupus. Please help us make a difference today.
All my love,
Did you know?
- Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
Together, we can solve the cruel mystery of lupus. Thank you for your generosity!