I’m Walking to End Lupus. Join Me?
Imagine a day when doctors can say, “There is a cure for lupus.” Until that day though, there is work to be done. That’s why I’m taking action in the fight against lupus. Join me as I participate in Lupus Foundation of America’s Walk to End Lupus Now™ in Austin, Texas to raise critical funds for the estimated 1.5 million people living with lupus in the United States. My personal journey with Lupus started in 2001. Sure, I have come this far through the stength of Jesus Christ - but there is so much more work to be done.
Will you make a donation to help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by lupus? A generous contribution of $25 or $55 can make a definite impact. What’s more, if your employer offers a Matching Gift Program to employees, you may be able to double your contribution with just a little bit of paperwork. Trust me, it’s worth the effort! Every single dollar counts.
Did you know?
- Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
Together, we can solve the cruel mystery of lupus. Thank you for your generosity!
My Personal Lupus Story!
When I was diagnosed with Lupus - I was entering my Sophmore year in college in Rochester, New York and I had just become engaged to my husband 6 months prior. On May 8th 2001, I was rushed to the emergency room barely able to breath and told a short time later that I needed emergency heart surgery. Fluid had built up in the lining of my heart, the effects of having the flu and pneumonia in the previous months. From this event, a rheumotologist was able to properly render a Lupus diagnose. Not only did I have 1 form of Lupus, I had 2 forms and 1 is extremely rare and never tested in drug trials for medications. I was then told that I should face the possibility that I would not finish college, never work a full time job and possibly be in a wheel chair by the age of 30.
My husband and I moved to Austin, Texas in 2010 and I began to see a new Rheumatologist that gave me hope for my quality of life. I began a fairly new Lupus infusion drug in 2012. By the Grace of God, the treatment has been successful for both forms of Lupus and I have been able to decrease other medications through the success. Today I am 36 - I graduated at the top of my class, I have been married for 14 years, I am 14 years into my full-time career, I AM NOT in a wheelchair and I remain as active as possible.
I will be at the Lupus Foundation of America’s Walk to End Lupus Now™ front and center and encourage everyone to join me and help the foundations effort to improve all peoples lives that are affected by Lupus.
"Alone we can do so little, together we can do so much more." - Hellen Keller