I’m Walking to End Lupus. Join Me?
The physician explained, “it’s not easy diagnosing someone with Lupus; it is like putting together a puzzle”.
Hello, my name is Sandra.
I still remember those words; even after 20 years of living with this chronic disease. I received my confirmed diagnoses in 1997, after what seemed like an endless array of blood draws, tests and examinations. I recall not being afraid, because lupus was a mysterious disease and I had never heard of it. The diagnoses gave a name to my joint pain, extreme fatigue, facial rash and body aches, but there were still so many unknowns.
Over the years, I realized the puzzle was not necessarily in the diagnoses but possibly in how I dealt with the disease. Lupus forced me to make changes; to cope with the physical limitations, manage my medication schedule and be alert to the occasional flare-up.
I think each of us has our own personal Lupus puzzle, and it certainly takes time to decide where to place the pieces. However; the two things we all have in common is the need for knowledge and for support.
The people I have meet over the years have had a profound effect on my wellbeing. The knowledge and the stories helped me to understand that I will have good and bad days but I should stay positive, keep smiling and manage my disease, and never let the disease manage me.
Imagine a day when doctors can say, “There is a cure for lupus.” Until that day though, there is work to be done. That’s why I’m taking action in the fight against lupus. Join me as I participate in Lupus Foundation of America’s Walk to End Lupus Now™ in [San Antonio] on April 6, 2019 to raise critical funds for the estimated 1.5 million people living with lupus in the United States.
Will you make a donation to help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by lupus? A generous contribution of $20 or more can make a definite impact. What’s more, if your employer offers a Matching Gift Program to employees, you may be able to double your contribution with just a little bit of paperwork. Trust me, it’s worth the effort! Every single dollar counts.
Did you know?
- Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
Together, we can solve the cruel mystery of lupus. Thank you for your generosity!