May of you know that I am the Executive Director for the Lupus Foundation of America, Indiana Chapter. But I'm not sure that you know how much my heart is a part of what we do.
When I started with LFA, I didn't know anyone with lupus. Two years later, my World is set in motion and given purpose by my friends and loved ones who have no choice but to deal with this cruel disease every day. They are warriors. All of them. And sometimes they are too tired to fight the battle all alone. They shouldn't have to.
I belong to several online lupus groups and recently I saw a video of a young lady who was being released from St. Vincent Hospital in Indianapolis after weeks of being there. Lupus attacked her central nervous system and destroyed ability to walk. This young lady essentially had to learn to walk all over again, at age 23. I messaged her --Meona --and introduced myself. I told her I'd like to meet her and hear her story. She messaged back and said she would be glad to help however she could. That was on August 14th.
We had a booth at the Indiana State Fair and we''ve been busy preparing for our Walk next Saturday at Military Park, so I didn't go visit Meona right away. And then, last Sunday morning I woke up to see on my Facebook feed that this precious girl had passed away the night before. My heart is broken for this amazingly beautiful girl, Meona Moore, and her family. I didn't act fast enough to bring her goodies as I said I would. So next Saturday, I am walking for Meona. And Michelle. And Carla. And Tiffany. And Jennifer. And Kristy. And Sharon. And Kayla. And Jessica. And Thaddeus. And Katrina. And Crystal. And Morgan. And And And And. There are too many people facing this disease alone.
Our Chapter provides monthly support groups statewide for people with lupus. We offer free wellness classes to lupus patients and their caregivers. We provide information to newly diagnosed people. We have events for patients to try to forget they have lupus for awhile. We host a lupus family picnic and instructional painting classes. Our organization is small but mighty --and we need your help.
Please make your donation today. YOU can make huge difference in the life of someone with lupus.
I’m Walking to End Lupus. Join Me?
Imagine a day when doctors can say, “There is a cure for lupus.” Until that day though, there is work to be done. That’s why I’m taking action in the fight against lupus. Join me as I participate in Lupus Foundation of America’s Walk to End Lupus Now™ in Indianapolis to raise critical funds for the estimated 1.5 million people living with lupus in the United States.
Will you make a donation to help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by lupus? A generous contribution of $25 or $55 can make a definite impact. What’s more, if your employer offers a Matching Gift Program to employees, you may be able to double your contribution with just a little bit of paperwork. Trust me, it’s worth the effort! Every single dollar counts.
Did you know?
- Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.