I’m walking to end lupus. Join me?
You don't have to walk. You can donate.
As most of you know, my beautiful daughter Lily was diagnosed with lupus at the age of 15. In January of 2015 we noticed a bald spot on Lily's head. Over the next year despite cranial injections and steroids, she lost all her hair. Lily was diagnosed with alopecia areata. Later that year she lost her eyebrows and her eyelashes. All of this while handling the transition to high school.
After many blood tests, a flare up and 118 appointments, with professionals and the wonderful team at Children's hospital- from nurses to endocrinologists, dermatologists, rheumatologists, immunologists and hepatologists Lily was diagnosed this year with lupus. She has been a trooper and gone thru chemotherapy treatments, infusion therapy, bullying at school due to her hair, and the change in her appearance.
We were devastated as a family and didn’t know what our future would bring. Lupus is so unpredictable and it affects everyone differently. Some people reject their hair, some reject their kidneys, some have aches and pains- the symptoms are as unique as each warrior.
We took advantage of a weekend conference that the Lupus foundation put on and it helped us by providing many resources and support.
We have felt like a family out of control for the past three years. This fundraiser is a way for us to control our contribution to combatting lupus. Our goal is to raise $8000.00 as a team. Last year was our first year participating and Lily was so encouraged by all the support she received-from donations and/or walkers. Please help us repeat our success of last year and either join us and walk or make a donation to help research.
We are working towards a day when doctors can say, “There is a cure for lupus.” Until that day though, there is work to be done. That’s why I’m taking action in the fight against lupus. Join me as I participate in Lupus Foundation of America’s Walk to End Lupus Now™ in St. Louis to raise critical funds for the estimated 1.5 million people living with lupus in the United States.
Will you make a donation to help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by lupus? A generous contribution of $25 or $55 can make a definite impact. What’s more, if your employer offers a Matching Gift Program to employees, you may be able to double your contribution with just a little bit of paperwork. Trust me, it’s worth the effort! Every single dollar counts.
Did you know?
• Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
• Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
• While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
• Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
Together, we can solve the cruel mystery of lupus. Thank you for your generosity!