Welcome to our fundraising team page.
FIFTY SHADES OF AWESOME was created 4 years ago by her family & friends, after our dearest SUNSHINE "Leesa Sengaphone" lost her fight with Lupus on Feb 1, 2013. She brought sunshine to many people while never letting this disease control her life. She lived every moment with strength, grace and carried the sunshine spirit everywhere she went. Her motto was "Live, Laugh, Love" and she did this until the very end.
I would like everyone to give a warm WELCOME to CRYSTAL PURNELL AKA LUPUS WARRIOR to our team again this year. She joined the tail end of 2016, but we are pleased in joining together once again for 2017 in this continuous fight to RAISE AWARENESS & CURE while she continues THE FIGHT to save her life!
HERE IS HER STORY:
"My name is Crystal Purnell and I've been a Lupus warrior for 13 years. My life changed the Summer of 2004, after waking up being unable to move. I was unable to dress myself or brush my teeth without the help of my mom. After being told I was having muscle spasms my best friend thought we should go to another hospital for a second opinion. I was then told I was showing signs of the first stage of Lupus & that I should have some labs done. Needless to say, they all came back positive and I was diagnosed with Systemic Lupus Erythematosus (SLE) on August 13, 2004. I wasn't familiar with the etiology and consequences of Lupus, therefore, I began to research. The only words that stood out was LIFE THREATENING, NO CURE, UNKNOWN and ORGAN FAILURE. Over the years I've had frequent flares, but managed to finish Respiratory School and have 2 beautiful children. The occurrence of flares have the tendency to interfere with "mommy duties" and my role as a Respiratory Therapist. Battling this disease has made me a much stronger individual. It has made me realize that I can do all things through Christ who strengthens me. Philippians 4:13."
Together, we can solve the cruel mystery of lupus. Join our team today and support our efforts! DONATE..DONATE.
LETS MAKE A DIFFERENCE TODAY!!!
TEAM FIFTY SHADES OF AWESOME