Hello. My name is Tamie Miller, and I am a former professional hairstylist and makeup artist. Before my official diagnosis in 2005, I did not know much about the autoimmune disease except that one of my older sisters had been diagnosed with it and passed due to complications of lupus. Since being diagnosed, I began to educate myself on what lupus was exactly, I began to realize, like many others, I had symptoms of lupus going as far back as to when I was a child. Lupus had, unknowingly, been part of my life for a long time.
Lupus Has Affected My World tremendously. Since being diagnosed, I no longer work in the industry, and I have hung up my apron as a hairdresser (except on special occasions). Lupus has greatly affected my life in the fact that I am unable to do the thing that I used to be able to do. Lupus has drastically affected my energy level. Tasks that used to be so simple for me have now become strenuous challenges.
There are days when my joints are in so much pain that it becomes extremely challenging to physically move. I take about 13 pills daily just to keep my symptoms from flaring up. My life consists of going to neurologists, dermatologists, and rheumatologists, while sometimes being required to go to specialist in between those major doctor visits. I go to counseling for my anxiety and depression since being officially diagnosed, and there are some days where I do not feel like participating in daily life, not because I do not want to, but because my body feels completely drained of energy.
Paying for all my medications, doctors’ visits, and necessary counseling has caused a financial strain, and there are times where I must choose between getting my medication or paying bills. Pretty much 99.9% of the time, I choose the latter.
So, in other words, Lupus has completely change my life as I once knew it. I went from being the woman who felt like she could do everything at once to a woman who must learn to pace herself.
Though living with lupus is a tough learning experience at times, I am fortunate enough to have strong support from others around me. Joining one of the local lupus groups truly helped me in the beginning because I could see that I was not alone. I am now a proud lupus advocate, and my goal is to educate others who may not fully understand what lupus is all about or who may be misinformed.
There needs to be more funding for more research in curing and understanding lupus. We need new drugs targeted specifically for lupus without the toxic side effects. We will not discover these necessary medicines without research. Furthermore, I am advocating today in the name of all my fellow lupus patients and their loved ones.
This is not a simple disease, and it can have a huge effect on not only the patient, but also their families and relationships. Today, I am advocating for me. Thank you for your dedicated efforts and support in helping us put an end to lupus. With your help and funding, a world without Lupus can be possible.
Please join me as I participate in Lupus Foundation of America’s Walk to End Lupus Now™ in Atlanta to raise critical funds for the estimated 60,000 Georgians and families living with lupus. 90% of every dollar donated stays in Georgia to fund Chapter programs, resources and advocacy.
The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable, and devastating diseases, while giving caring support to those who suffer from its brutal impact.
We all envision a life free of lupus.
A generous contribution of $25 or $55 can make a definite impact. What’s more, if your employer offers a Matching Gift Program to employees, you may be able to double your contribution!
Our Impact on Lupus Research:
Throughout our history, the Lupus Foundation of America has made pioneering contributions toward ending the brutal impact of this misunderstood and unpredictable disease.
*We are the first lupus organization to dedicate funds toward research into cardiovascular disease in lupus.
*We are the only lupus organization with a dedicated commitment to pediatric research.
*We are the only lupus organization in the U.S. with a dedicated focus on unlocking the mysteries of lupus and its impact on the brain and kidneys.
*We are the first lupus organization to fund adult stem cell research.
*We have secured nearly $75 million in federal funding for lupus research, professional training and education through our advocacy initiatives.
Read more about our accomplishments and achievements in lupus research at lupuga.org.
Together, we can solve the cruel mystery of lupus. Thank you for your compassion and support!