2019 Walk To End Lupus Now South Florida

Sole Sistas

If you've ever watched the show House, you know the diagnosis is never lupus.

But for an estimated 1.5 million people in the United States, the diagnosis was exactly that.  Lupus can be a very confusing disease because the symptoms range from none to severe including pain, extreme fatigue, hair loss, cognitive issues, physical impairments, cardiovascular disease, strokes, and rashes.  The fact that the symptoms of lupus are not clearly defined may contribute to the reason why 63% of Americans surveyed know little or nothing about this disease.  Here are a few facts to help grow your understanding:

  • Lupus is an autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
  • Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
  • While lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk. 
  • Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat the disease.
  • 10-15 percent of people with lupus will die prematurely due to complications of lupus.

I started this team in support of a soul sister who was diagnosed with lupus in our senior year of college (2013).  It took the entire school year to reach a diagnosis and longer still to settle into a treatment routine and get the disease under control.  Today, she continues regular treatments and is preparing to face the challenges that lupus will pose with pregnancy.

I have seen firsthand the impact that this disease has so I am walking and raising money to support the Foundation's efforts to:

  • Develop safer and more effective treatments for lupus
  • Increase the level of care for everyone affected by lupus
  • Ensure that doctors diagnose and begin treatment for lupus more quickly and accurately

I would love for you to join me, either on foot or by making a secure contribution on the walk page! If you'd like more information on lupus or the Walk to End Lupus Now in South Florida, please feel free to contact me: sarah.muehleman@gmail.com

Thank you!

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