Hi, I'm Sabrina.
I'm a mother, daughter, sister, family member and friend surviving Lupus. I was given this life-changing diagnosis in 2002 and have been fighting this seemingly never-ending battle against the disease ever since!
Like most people on this road, my journey with Lupus started well before I was actually diagnosed. It began with repeated upper respiratory infections followed by lab tests and no improvement over a year or two and a referral to a rheumatologist. In 2002 I was officially diagnosed with SLE and related conditions. The words used by doctors terrified me and before I did my research I thought I'd just been given a death sentence. Perhaps it was in some ways because it was the death of the me I'd known up until that point. Devastation is probably the best term to describe the feeling of being diagnosed. I muddled through the years that followed. Sometimes I rebelled and went off my medication since I wasn’t feeling any better. I’ve learned over time doing so is a big mistake. There have been significant challenges over the years with relationships, finances, navigating the healthcare system, etc., that I can’t possibly explain in this bio. However, I am compelled to share one important event in hopes it catches the attention of those of you with Lupus or who know others suffering with this disease. In 2008 my world was turned completely upside down by Lupus due to a pulmonary embolism (a blood clot in the lung). It turns out that big word doctors used when reading off my lab results "antiphospholipid blah blah blah" translates into "you can unexpectedly have a blood clot anytime for the rest of your Coumadin-taking life". Look it up: Antiphospholipid Antibody Syndrome (APS). Knowing the symptoms of this condition, including blood clots, and how it relates to people with Lupus could very well save a life. I was fortunate to have a primary doctor who was familiar with APS and I give her credit for saving me. Like Lupus, there is no cure for APS.
Over the next several years I learned to manage my new normal but not always with the best attitude. I went through periods of being angry with God and the world. I was too young, I had children, none of my friends had such horrible stuff happening to them, it wasn't fair and a billion other reasons I didn't deserve to have Lupus and APS. In 2012, I saw new doctors who totally changed my treatment plan and therefore changed my life as it was. I began to have hope again. I made some significant personal decisions and my outlook on being cursed with this “lupie life” has improved over the last few years. It has not been an easy road by any means. I've had some scary, challenging health situations and I faced them head on with love and support from my family and friends. I am truly blessed to have such people help me fight this battle when I am weary. I know others battling this disease are not as fortunate.
I’ve made a personal commitment to fight Lupus and all that those words entail both personally and in my community! I'm fighting for myself, my children, my family and for everyone battling this disease. It is not acceptable to me that people like me are losing their lives to this disease. We need a cure! I don't want another person or generation of people to suffer with this disease. It's time to do something! Will you help me?
Like everyone Lupus touches, I dream of the day when doctors can say, “There is a cure.” Until that day though, there is work to be done. That’s why I’m taking action in the fight against this dreadful disease. Please join me as I participate in the Lupus Foundation of America’s Walk to End Lupus Now™ in Jacksonville, Florida to raise critical funds for the estimated 1.5 million people living with Lupus in the United States.
Did you know?
*Lupus is a mysterious and misunderstood autoimmune disease. It strikes without warning, affects each person differently, and has no known causes or cure.
*Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
*While Lupus can strike anyone at any time, 90% of people living with lupus are women. Women of color are at especially high risk.
Will you make a donation to help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by Lupus? Your contribution can make a huge impact! Every single dollar counts!
Together, we can solve the cruel mystery of Lupus!