September 4, 2018

Serving Indiana

Is it normal fatigue or a lupus flair?

Scroll down for the answer.

Dear Friends,  

We are exhausted from all of the fun at the Indiana State Fair LFA booth, but we're down right giddy about the upcoming Walk to End Lupus Now, Indianapolis, on Saturday, September 29th, in Military Park. We love this location and this year, free parking is available across the street from the park (see our website for details) at IUPUI. This is our largest event of the year --last year we had more than 1,100 Walkers --and this year should be even bigger! Please walk with us to make that happen. We're also looking for volunteers to help make this year's walk a success. If you are interested in volunteering, please email Shelly@lupusindiana.org.

Fundraising is easy and you still have time to earn your purple 100 club t-shirt! Walkers who have fundraised or donated $100 by September 9th will get their Purple t-shirt on Walk Day. After September 9th, Walk shirts will be available on a first-come, first-served basis and will also be available after the Walk.

In October, we welcome you to our 2nd Annual In the Loop - Healthy Living with Lupus Symposium. Chef Wendell will be our keynote speaker and we have eight informative breakout sessions on everything from CBD Oil for Pain Management to Lupus and Relationships. We're also welcoming exhibitors to this event. if you're interested in sponsoring, exhibiting, or volunteering for In the Loop, please email Shelly@lupusindiana.org.

Finally, thank you to all of our volunteers over the summer. We had the Indianapolis Black Expo, the Shalom Health Fair, Lupus Family Picnic, a northwest Indiana health fair, and 16 volunteers for the six days we spent at the Indiana State Fair. We truly couldn't do it without you.

Sincerely,

Lisa Kelly
Chief Executive Officer

  Indiana State Fair or Bust!

• 6 Days!
• Over 800 Booth Visitors!
• $500.00 in merchandise sold!
• 16 AMAZING volunteers! 

Walk to End Lupus Now Indianapolis - Sat., Sept. 29th, with Lindsey Monroe from WTHR

This year's Walk will be held at Military Park/Canal Walk, 601 W. New York Street in Downtown Indianapolis and will be emceed by WTHR Meteorologist, Lindsey Monroe.  DJ Rusty Redenbacher will rock the Walk with tunes, and Andre "The Beast" Crayton will lead our Walk warm-up exercise. We are truly blessed!

 We'll have exhibitors this year offering their unique wares, and hot dogs and brat meals available for $3 and $4, so come prepared to eat and shop! The Frigid Frog truck will also be there for cool refreshments. And don't forget! Walkers with lupus are invited to the VIP Tent, sponsored by Duke Energy, to enjoy lunch from McAlister's Deli --thank you, McAlister's!

When you take part in a Lupus Foundation of America, Indiana Chapter's Walk to End Lupus Now™, you experience firsthand the power of the movement to end lupus. Join us in Indianapolis to raise money for lupus research, increase awareness of lupus, and rally public support for the estimated 36,000 Hoosiers who suffer from its brutal impact.

Fundraising is easy and you stll have time to earn your purple 100 club t-shirt!  Walkers who have fundraised or donated $100 by September 9th will get their purple t-shirt on Walk Day.  After September 9th, Walk shirts will be available on a first-come, first-served basis and will also be available after the Walk. 

Please click here for additional fundraising tips and tricks

SIGN UP NOW TO WALK

Come see us on Saturday, October 27, 2018 from 8:30 am to 4:15 pm at the Crowne Plaza Airport Hotel in Indianapolis for our second annual 'In the Loop - Healthy Living with Lupus' educational symposium.

Dr. Robert Prather will be among our break-out session speakers and will be leading sessions on Alternative Methods for Maximum Health (Acupuncture, Essential Oils, Nutrition and Chiropratic Care) and Understanding the Natural Process of Lupus.    Click here to visit his bio

The speakers and their topics are as follows:

• Understanding the Natural Process of Lupus – Dr. Robert Prather, The Prather Practice
• Lupus Research and Clinical Trials – Maria Silk, Eli Lilly and Company
• CBD Oil and Pain Management – Dr. Gary Gettelfinger, IU Health Advanced Pain Center
• What You Might Not Know About Lupus – Dr. David Batt, IU Health Physicians Rheumatology
• Lupus and Relationships (Spousal, Family, Friends, Employers and Co-Workers) – NaKaisha Tolbert-Banks, D.U.O. EmpowerMEnt Services
• Alternative Methods for Maximum Health (Acupuncture, Essential Oils, Nutrition, and Chiropractic Care) – Dr. Robert Prather, The Prather Practice
• Stress Management, Depression and Anxiety Management – Dr. Martha Rodriguez, Riley Hospital for Children at Indiana University
• Lupus and the Central Nervous System – Dr. Steven Neucks, Rehabilitation Associates of Indiana

For more information and to register, visit In the Loop on our website

Presenting Sponsor: 

Tranquil Tuesdays

Senate Passes  Legislation for Lupus Research Funding

Support Group Meetings

We are very excited that in addition to offering free gentle yoga and tai chi classes, we've just added a  mindful meditation class for people with lupus and one caregiver or support person. The location of the classes has also moved and we hope that this new location is more convenient. Thank you to IU North for allowing us to use their facility for the last two years. 

All classes are free but registration for your first class is required. Sign up now.

When:  

2nd Tues of month - Yoga

3rd Tues of month - Mindful Meditation

4th Tues of month - Tai Chi

Classes are from 6:30-7:30 pm.

Where: All Souls Unitarian Church, 5805 E. 56th Street at Channing Road, Classroom #1,Indianapolis 46226

We are excited to share that the U.S. Senate passed legislation on August 20, 2018 that includes major funding for lupus research programs.

Read more here

We hope you'll join us at one of our support group meetings this month!  The philosophy of our support groups is to provide a warm and caring environment where people with lupus, their family members, caregivers and loved ones can share their experiences, methods of coping and insights into living with lupus.  LFA support groups help develop the best coping strategies to reduce a stress that often accompanies living with a chronic illness.

SUPPORT GROUP MEETING CHANGES:

*The Anderson support group meetings have moved to the United Way, 205 W. 11th St. Conference room.  In addition, Shemeka Jones has joined Bonnie Sweeney and Dr. Marie Kelly-Worden as a co-facilitator for the group.  

*The Kokomo support group will not be meeting in September due to the Labor Day Holiday.  Julie Smith looks forward to joining Stacy Weller as co-facilitator when the group reconvenes in October.

For specific meetings/locations, click here

Attn: Northwest Indiana!

We will be planning a fun lupus event in the the Northwest Indiana region and need committee members to help us plan. Please emal Lisa@lupusindiana.org if you are interested. Thank you in advance!

Click the button below to become a Champion for Hope with your monthly gift of $10, $15, $25 or more to the Lupus Foundation of America, Indiana Chapter and make a difference in the lives of those affected by lupus. Your support will help bring us one step closer to our vision of a life free from lupus.

Answer:  Is it normal to be tired at the end of the day, especially if you have been physically active?  If you have lupus and your work or home life requires high levels of energy, it is normal to feel exhausted.  Not every bout of fatigue is a lupus flair.  The best way to determine whether or not you are having a flare is to learn about the symptoms and triggers, track them carefully, and keep the lines of communication open between you and your doctor.  Learn more here.

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