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LFA, Indiana Chapter Cruel Mystery

November 2, 2017

Newsletter



Serving Indiana

 
Question

Are the flu and pneumonia vaccines safe
for me if I have lupus?

Scroll down for the answer.

A Message from our CEO, Yolanda Wide

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Dear Friends,

Greetings!

We hope you were able to join us at this year’s Walk to End Lupus Now. The event was great, because of the efforts of our supporters funding was raised to support research and patient service. 

Stay tuned for future initiatives and programs!

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Yolanda Wide, CEO, Lupus Foundation of America, Indiana Chapter

In the Loop - Healthy Living with Lupus Symposium Dec 9th

 

In the Loop

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Get in the loop by attending this year's 'In the Loop - Healthy Living with Lupus' educational symposium being provided by our Chapter! This year instead of having several small seminars, we will be having one full-day symposium. Attendees will be able to select topics of interest from morning and afternoon breakout sessions led by national and local professionals.  

Date:

Saturday, December 9, 2017

Time: 

9:30 am-3:45 pm (check-in, continental breakfast and exhibit booths from 8:30-9:30 am)

Location:

Crowne Plaza Airport, 2501 S. High School Rd. in Indianapolis

Dr. Susan Manzi, Director, Lupus Center of Excellence and Chair, Department of Medicine Allegheny Health Network, will be our special guest. Also hear from the Indiana State Health Department on the importance of awareness and research for lupus and other health disparities. 

Breakout session topics and speakers:

  • Lupus and Mental Health - Judy Schaff, psychotherapist who has lupus
  • “Despite Lupus: How to Live Well with a Chronic Illness” - Sara Gorman, author and health blogger who has lupus
  • Lupus and Healthy Sleep - Dr. Stephanie Jackson, IU Sleep Disorders Center
  • Gentle Yoga/Tai Chi Session - Pam Glenn/Bonnie Sweeney
  • Value of Alternative Methods in Dealing with Chronic Disease - Dr. Ralph Waldo, Connected Health Care Systems
  • Stress Management - Sydney Johnson, CHW, Anthem Indiana Medicaid
  • Relationships, Emotions and Intimacy - Iris Zink, president, Rheumatology Nurses Society
  • Energize Me: Diet, Meal Planning and Exercise - Shantay Glover, YMCA certified fitness trainer
  • How to Advocate - Gary Gibson, president/CEO, Martin Center Sickle Cell Initiative
  • Lupus and Overlapping Connective Tissue Disease - Dr. Kathleen O’Neil, chief, pediatric rheumatology, Riley Hospital for Children at IU Health
  • Lupus and Pain Management - Dr. Steven Neucks, rheumatologist, board certified in pain medicine, Rehabilitation Associates of Indiana

                 PURCHASE TICKETS 

 $20/person ticket includes continental breakfast, symposium materials, goody bag and lunch.

If you require hotel accommodations, a group rate of $139/night is available. The hotel offers an indoor pool and exercise room for guests' enjoyment. To book a hotel room at this rate, visit https://aws.passkey.com/e/49134279 or call 317.244.6861 and ask for reservations department and provide group code "LUP" or tell reservationist that you are with the Lupus Foundation. This group rate is also good for Saturday night, December 9.   

To ensure room availability and this group rate, reservations must be made by Wednesday,  November 8. Blocked rooms held for symposium guests will be released after this date.


     Meet Our Keynote Speaker, Dr. Susan Manzi

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We are very excited that Dr. Susan Manzi, co-founder and director of the Lupus Center of Excellence and the Medical Director for the National Lupus Foundation of America, will be our keynote speaker at the ‘In the Loop – Healthy Living with Lupus’ educational symposium.

Dr. Manzi co-founded the Lupus Center of Excellence as a new model for Integrated Patient Care and Clinical-Translational Research. This Center services patients from around the world. Dr. Manzi has served on numerous NIH study sections and is a member of several Data Safety and Monitoring Boards for the National Institutes of Health and serves as an advisor to industry on drug development for autoimmune diseases. Dr. Manzi has published over 200 reports of research in autoimmunity. She authored her first book, ‘Lupus the Facts’ in 2008.

Dr. Manzi is co-inventor of a biomarker platform of blood tests for autoimmune disease diagnosis, monitoring and prognosis. These efforts have resulted in six patents or patents pending and exclusive licensing of this technology to Exagen Diagnostics, Inc. The diagnostic test is now commercially available. She is recognized nationally and internationally as a leader in lupus patient care and research, and a pioneer in scientific investigation of cardiovascular disease in patients with systemic lupus erythematosus.

Dr. Manzi is System Chair, Department of Medicine, Allegheny Health Network and Professor of Medicine Temple University School of Medicine. Dr. Manzi earned her medical degree from the University of Pittsburgh School of Medicine and she completed her medical internship and residency at Duke University Medical Center in Durham, North Carolina. Dr. Manzi completed her fellowship in Rheumatology at the University of Pittsburgh Medical Center and received her Master of Public Health from the University of Pittsburgh Graduate School of Public Health in Pittsburgh, Pennsylvania. 


Things To Do!

    Trailblazer Success

Be a Joiner!

This Sunday, November 5th, join us at Cyclebar Carmel for a 50-minute ride to benefit our Chapter. Ride for only $30. Refreshments to follow. 

Time: 1:00 p.m. - but arrive 15 minutes early.  Register online here.

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Shop & Support LFA Indiana Chapter while you conquer your holiday shopping. Join us at Vineyard Vines and take 10% off your purchase while Vineyard Vines gives 10% back to LFA, Indiana Chapter.  

Vineyard Vines at Keystone Crossing on Thursday, November 30, 2017 from 5-9 p.m.

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LFA, Indiana offers Gentle Yoga and Tai Chi classes for people with lupus and one caregiver or support person. The cost is free, but registration for your first class is required. *There are no November classes. 

Watch and Learn about the health benefits of Yoga.

Sign up now.

When: Yoga will meet on the first Saturday of December (on the 2nd).

Where: IU North Hospital, 11700 N. Meridian Street, Carmel. Learning Centers A & B.


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Ask the Experts is a series of live educational teleconferences and pre-recorded webcasts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home.

Wellness Coach: A Healthy Approach to Lupus

Wednesday, November 15, 2017
7:00 – 8:00 PM, EST
Committing to a healthy lifestyle can be overwhelming. Join Erica Daniel as she provides you with a process to work actively towards a better quality of health by providing support, encouragement, education, and tools. 
Presenter: Erica Daniel – CEO & Founder of Elnspire LLC, Speaker, Author, Coach

REGISTER

These live 1-hr. teleconferences accessible via a toll-free number. Teleconferences will also be recorded and posted online. Pre-registration is required. Call-in/log-in information will be provided to all registrants one week before the event.

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What an exciting year for the Walk to End Lupus Now, Indianapolis!! 

The Lupus Foundation of America proudly recognizes our Walk Trailblazers, walkers who raised at least $1,000.00.

This year we had 11 dynamic Trailblazers and we are so proud of all of you!

A special thank you to: 
Crystal Bradley
Kristy Carter
Emily Clare
Rachel Cullina
Carla Day
Myrna Janer
Robin Miner
Sharon Robinson-Reed
Maria Silk
Julie Smith
Morgan Verrill 

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We are looking for volunteer committee members for our 2018 A Tasteful Affair event.

This is our chapter's second largest fundraising event annually, and we hope to make next year's event even more successful.

All that's needed to join is a CAN-DO attitude and a desire to help. Please email Lisa if you are interested in being on the ATA planning committee. Meetings will begin in December.

Online Support Group

 Diet and Nutrition with Lupus

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Our online support group is your opportunity to get support and guidance in the comfort of your own home. 

The online support group meetings will be held the last Monday of each month from 7 - 8 pm. The next meeting will be Mon. November 27th. 

So climb into a comfy spot with your laptop the fourth Monday of each month, and surround yourself with people who care and understand what you're going through. Support is only a click away.

To register or learn more click here

Statewide November Support Group Meetings

We hope you'll join us at one of our support group meetings this month! The philosophy of our support groups is to provide a warm and caring environment where people with lupus, their family members, caregivers, and loved ones can share their experiences, methods of coping, and insights into living with lupus. 

LFA support groups help develop the best coping strategies to reduce stress that often accompanies living with a chronic illness.

For specific meetings/locations, click here.

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There is no special diet for lupus, despite numerous claims on the Internet, and in various books and other publications.

In general, you should try to eat a nutritious, well-balanced, and varied diet that contains plenty of fresh fruits and vegetables, whole grains and moderate amounts of meats, poultry, and fish.

One food for people with lupus to avoid is alfalfa. Alfalfa tablets have been associated with reports of a lupus-like syndrome or lupus flares. The lupus-like effects may include muscle pain, fatigue, abnormal blood test results, changes in how the immune system functions, and kidney problems.

These reactions may be due to the amino acid L-canavanine (found in alfalfa seeds and sprouts, but not in leaves), which can activate the immune system and increase inflammation.

Read more here.

 

Click the button below to become a Champion for Hope with your monthly gift of $10, $15, $25 or more to the Lupus Foundation of America, Indiana Chapter and make a difference in the lives of those affected by lupus. Your support will help bring us one step closer to our vision of a life free from lupus.


Donate Now


Answer

Answer:  Overall, the flu shot is considered to be safe and effective for people with lupus. People with lupus generally do not have any side effects from the flu shot. When they do, their symptoms are usually mild.


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