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LFA, Indiana Chapter Cruel Mystery

September 1, 2017

Newsletter



Serving Indiana

 
Question

What are the risk factors for heart disease, and how can I minimize my risk?

Scroll down for the answer.

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A Message from our Board Chair, Dr. Camie Wright

Dear Friends,

Can you believe it is September already?! Time to put away the summer shorts and pull out our Fall sweaters. It's also time to register your team for the 2017 Walk to End Lupus Now on Saturday, October 7, 2017 at 12 pm at Celebration Plaza at White River State Park/Canal Walk.  We currently have 72 teams registered and would love to have your support as well! Event details can be found here. This year we are encouraging our Walkers to bring and walk with their furry best friends! All dogs must be leashed of course, and pet owners should clean up after their pets responsibly. 

An important fundraising reminder to all registered Walkers: If you, individually, fundraise $100 or more by September 22nd, you will receive your purple 100 Club Walk T-shirt on Walk Day! If you raise $100 after the 22nd, your 100 Club T-shirt will most likely be mailed to you after Walk day.

Tickets are already being purchased online for our next exciting event --our inaugural symposium, In the Loop: Healthy Living with Lupus, on Saturday, December 9, at 9:30 am at the Crowne Plaza Airport in Indianapolis. This full day conference will feature various speakers who will discuss topics of importance to those impacted by lupus. Dr. Susan Manzi, Director, Lupus Center of Excellence and Chair, Department of Medicine Allegheny Health Network, will be our special guest. The Indiana State Health Department will also present on the importance of awareness and research for lupus. More information and symposium registration can be found here.

Finally, I’d like to mention our continuing sponsor, Eli Lilly and Company. Through their longtime sponsorship of the Walk, A Tasteful Affair, as well as our educational and support programs, we have been able to provide patients with statewide support groups and provide newly diagnosed patients the literature, information, and resources they need to move forward through uncharted waters. Read more about Eli Lilly and Company in our Spotlight Section below.

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Camie Wright, M.D., Board Chair, Lupus Foundation of America, Indiana Chapter


     Walk to End Lupus Now Only 5 Weeks Away!!

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This year we are encouraging our Walkers to bring and walk with their furry best friends! All dogs must be leashed of course, and pet owners should clean up after their pets responsibly. 

When you take part in a Lupus Foundation of America, Indiana Chapter's Walk to End Lupus Now™, you experience firsthand the power of the movement to end lupus. Join us in Indianapolis to raise money for lupus research, increase awareness of lupus, and rally public support for the estimated 36,000 Hoosiers who suffer from its brutal impact.

The momentum for the Walk to End Lupus Now™ Indianapolis is growing! We already have more than 70 teams signed up and raising funds. If you haven't started your team yet, this is the time! We only have five weeks until the Walk on October 7th, so get your fundraising on!

Remember if you, individually, fundraise $100 or more by September 22ndyou will receive your purple 100 Club Walk T-shirt on Walk Day! If you raise $100 after the 22nd, your 100 Club T-shirt will most likely be mailed to you after Walk day.

Click here to register for the Walk to End Lupus Now - Indianapolis on October 7th at Celebration Plaza at White River State Park/Canal Walk. 

We still have a few Walk to End Lupus Now yard signs available for pick up at our office. Please email lisa@lupusindiana.org if you are interested in picking one or more of them up to set out for all to see.

Contact our Chapter office at 317.225.4400 or 800.948.8806 for help getting started in 2017, or for fundraising ideas ~ we are here to help you have your best Walk year ever!

In The Loop - Healthy Living with Lupus Symposium

In the Loop

Get in the loop by attending this year's 'In the Loop - Healthy Living with Lupus' educational symposium being provided by our Chapter! This year instead of having several small seminars, we will be having one full-day symposium. Attendees will be able to select topics of interest from morning and afternoon breakout sessions led by national and local professionals.

Date: Sat., Dec. 9, 2017

Time: 9:30 am -3:45 pm (check-in, continental breakfast and exhibit booths from 8:30-9:30 am)

Location: Crowne Plaza Airport, 2501 S. High School Rd. in Indianapolis.

We are very excited about the excellent panel of speakers who will be joining us at the ‘In the Loop – Healthy Living with Lupus’ symposium on Sat., Dec. 9. One of these speakers is Judy Schaff, M.S., who will be leading a breakout session on Lupus and Mental Health.

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Judy brings a unique perspective to leading this discussion as she is a professionally trained psychotherapist who has been a lupus patient for the past 39 years. Judy is an avid supporter of the LFA. You will often hear her say, “The LFA and my doctor saved my life.” 

Judy earned her master’s degree in Rehabilitation Counseling from the University of Wisconsin Milwaukee, specializing in mental health treatment. She was diagnosed with lupus at the age of 24, while attending graduate school.  She worked as a psychotherapist for 25 years as a triple board certified therapist in Wisconsin, where she treated patients with lupus, other autoimmune disorders, as well as addictions to alcohol, drugs and gambling.

After 25 years of therapy experience, Judy entered the pharmaceutical industry, primarily working in the medical departments in the neuroscience and autoimmune diseases areas.  She is currently working as a medical science liaison for Bayer Health Care in the pharmaceutical division and speaks to neurologists about the latest research for the treatment of MS.  Judy is married and has one son, aged 31. Her mother and five other family members suffer from lupus, RA, or other autoimmune disorders.

Please visit http://www.lupus.org/indiana/events/entry/in-the-loop-healthy-living-with-lupus-symposium for symposium information, to see additional breakout session speakers and topics, and to register. 

Purchase Tickets - Registration is required by Tues., Dec. 5.

$20/person ticket includes continental breakfast, symposium materials, goodie bag and lunch. Scholarships are available by calling the LFA-IN office.

If you will be coming to Indianapolis on Friday evening and require hotel accommodations, a group rate of $139/night is available. The hotel offers an indoor pool and exercise room for guests' enjoyment. To book a hotel room at this rate, visit https://aws.passkey.com/e/49134279 or call 317.244.6861 and ask for reservations department and provide group code "LUP" or tell reservationist that you are with the Lupus Foundation. This group rate is also good for Saturday night, December 9. To ensure room availability and this group rate, reservations must be made by Wednesday, November 8. Blocked rooms held for symposium guests will be released after this date.

LEARN MORE


Spotlight on Eli Lilly and Company

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Lilly

Across the globe, Lilly employees work to discover and bring life-changing medicines to those who need them, improve the understanding and management of disease, and give back to communities through philanthropy and volunteerism.

Lilly was founded in 1876 by Colonel Eli Lilly, a man committed to creating high-quality medicines that meet real needs. More than a century later, the company is passionate about building on this precedent in its continued pursuit to make life better for individuals, communities, and the world.

Lilly's heritage and values are the foundation of their promise to unite caring with discovery to make life better for people across the globe. Headquartered in Indianapolis, Lilly employs approximately 41,000 worldwide. Lilly makes life better for people with lupus by supporting the LFA-Indiana's fundraising and advocacy goals for the past 5 years. The largest supporter of both the Crown Point, Indiana and the Indianapolis Walk to End Lupus Now! events, the Chapter owes its growth and success to Lilly's partnership.  


Featured Events

Lupus Connect

Support

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LFA, Indiana offers Gentle Yoga and Tai Chi classes for people with lupus and one caregiver or support person. The cost is free, but registration for your first class is required.

Sign up now.

When: Yoga on the 2nd Saturday of each month. Tai Chi on the 4th Saturday* 
All classes from 11 a.m. - 12 p.m. 

NOTE - September and October Yoga classes will be held the 3rd Saturday

Where: IU North Hospital, 11700 N. Meridian Street, Carmel. Learning Centers A & B.

NOTE -September Tai Chi class will be held in Room K130.

 


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Ask the Experts is a series of live educational teleconferences and pre-recorded web casts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home.

These live teleconferences last one hour and are accessible via a toll-free number. Teleconferences will also be recorded and posted online. Pre-registration is required. Call-in/log-in information will be provided to all registrants one week before the event.

The September 5th teleconference topic is Cardiovascular Disease and Lupus, 7:00-8:00 PM EST. 

Heart disease is a major complication of lupus and is now a leading cause of death among people with lupus. There are several ways to decrease your risk for developing lupus-related disease, including reporting changes in symptoms to your doctor right away and having and understanding of the major risk factors. This teleconference will address everything you need to know about how to live heart healthy with lupus.

Presenter: George Stojan, M.D.

Learn more or register here

If you missed any of the previous Ask the Experts teleconferences, the recorded sessions and presentations are available here on our website.

 

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Circle of Bosses presents the Lupus Awareness Gala on Friday, September 8, 2017, in Anderson, Indiana. Food, drinks, live music and auction fun! For more information email Robert at cobindiana@gmail.com.

A Make Your Mark Event

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Make Your Mark™ is the Lupus Foundation of America's community fundraising program. It gives everyone a chance to get involved in supporting the fight against lupus. The Make Your Mark™ program will help you to create a unique event —so that you can make your mark in solving the cruel mystery of lupus. Learn more

 

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LupusConnect is an easy-to-use, 24/7, online platform that serves as an outlet for individuals with lupus and their loved ones to discuss practical suggestions for coping withe daily challenges of the disease. Members experience a positive and comforting environment and are encouraged to post questions and read about others' experiences in a safe community. Join the community here.

No matter how isolated lupus can make people feel, LupusConnect is a place you can visit anytime and from anywhere to share your questions and concerns, and learn something new.

LupusConnect is a safe haven where members can express their fears, frustrations and hopes with people whom they have a common bond.

LupusConnect is where people impacted by lupus go to connect with others who know what it's like to live with or care for someone with the disease and can feel understood and supported emotionally.

LupusConnect is designed to serve as a powerful social support outlet for people affected by lupus, and further extends the Lupus Foundation of America’s mission by providing access to high-quality resources, programs and support services.

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LFA, Indiana Offers Statewide Support Groups

The philosophy of LFA support groups is to provide a warm and caring environment where people with lupus, their family members, caregivers, and loved ones can share their experiences, methods of coping, and insights into living with lupus. 

LFA support groups provide a comfortable learning environment to help members develop the best coping strategies to reduce stress that often accompanies living with a chronic illness. Our Chapter is fortunate to have professionally-trained volunteers to lead our support group meetings and offer support to lupus patients, friends, and family members.

More information about our support groups

To help us make others aware of our support group meetings, would you please share and/or post a flier of our support group meetings?

Support Group PDF for sharing

If there’s a specific support group meeting in your community that you’d like to help us promote by posting/sharing a flier specific to that support group, please contact Debbie.

 

 


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Click the button below to become a Champion for Hope with your monthly gift of $10, $15, $25 or more to the Lupus Foundation of America, Indiana Chapter and make a difference in the lives of those affected by lupus. Your support will help bring us one step closer to our vision of a life free from lupus.

Donate Now


Answer

People with lupus have two categories of risk factors for heart disease. The traditional risk factors that affect the general population apply to people with lupus and appear more frequently among them. But lupus itself raises additional risks of coronary artery disease, or blockage in the arteries. Controlling your blood pressure and cholesterol and making wise lifestyle choices like eating a healthy diet and exercising regularly are important ways you can modify these risks. Always speak to your doctor before beginning an exercise program.  Learn more by participating in tonight’s Ask the Experts Teleconference. Register


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Lupus Foundation of America, Indiana Chapter
9302 N. Meridian Street, Suite 203
Indianapolis, IN 46260
Tel: 800.948.8806
lupusindiana.org