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LFA, Indiana offers Gentle Yoga and Tai Chi classes for people with lupus and one caregiver or support person. The cost is free, but registration for your first class is required.
Sign up now.
When: Yoga on the 2nd Saturday of each month. Tai Chi on the 4th Saturday*
All classes from 11 a.m. - 12 p.m.
*Due to the holiday weekend, Tai Chi class will not meet in May.
Where: IU North Hospital, 11700 N. Meridian Street, Carmel. Learning Centers A & B.
We are so excited that our Indiana Chapter is participating in this year's Walking for Dreams, on May 21, 2017.
Walking for Dreams is an approximately 5K Family and Pet Walk that was started in 2004 to help local Indianapolis non-profit organizations raise needed funds to enable them to do more of what they do so well – serve the youth and families of Indianapolis. For the second year in a row, Walking for Dreams expands to the Evansville area for the 2017 walk!
Walking for Dreams pulls together local organizations to share in a joint fundraiser. Walkers of all ages will join together to support their special organization by raising pledges and participating.
Thanks to the generous sponsorship of local corporations, all checks turned in by the walkers should be made out to your chosen non-profit and will be given directly to the selected organizations and are 100% tax deductible. Learn More!
Our sixth annual A Tasteful Affair fundraiser will be held on June 23, from 6:30 pm to 11:00 p.m at The Ritz Charles, 12156 N. Meridian Street in Carmel.
This year's event will include tastings from local restaurants and breweries (must be 21 to attend), as well as our awesome silent and live auctions, and music to dance to from The Bishops! You're not going to want to miss this!
Check out some of the fun auction items you can bid on this year!
* We are still looking for auction items valued at least $100, as well as 90 points or better wine for the wine pull for A Tasteful Affair. If you or your company can help, please contact Lisa@lupusindiana.org. Thank you!
Krazy Horse Krew's 6th Annual Rockin' Purple for Lupus Ride, Saturday 7/29/2017
The Krazy Horse Krew is a group of family and friends riding to raise money and awareness for LFA, Indiana Chapter. Gear up, get fired up and ready to ride. Kickstands up at 1:00 P.M at 920 N. Washington St. in Kokomo.
For more information, visit our website.
LFA, Indiana Offers Statewide Support Groups
The philosophy of LFA support groups is to provide a warm and
caring environment where people with lupus, their family members, caregivers,
and loved ones can share their experiences, methods of coping, and insights
into living with lupus. LFA support groups provide a comfortable learning
environment to help members develop the best coping strategies to reduce stress
that often accompanies living with a chronic illness. Our Chapter is
fortunate to have professionally-trained volunteers to lead our support group
meetings and offer support to lupus patients, friends, and family members.
More information about our support groups
To help us make others aware of our support group meetings, would you please share and/or post a flier of our support group meetings?
Support Group PDF for sharing
If there’s a specific support group meeting in your community that you’d like to help us promote by posting/sharing a flier specific to that support group, please contact Debbie Campbell
Register for Walk to End Lupus Now!
Click here to register for the Walk to End Lupus NOW. The Walk will be held on October 7th at Celebration Plaza at White River State Park/Canal Walk. Check-in opens at 10:30 AM.
When you take part in a Lupus Foundation of America, Indiana Chapter's Walk to End Lupus Now™, you experience firsthand the power of the movement to end lupus. Join us in Indianapolis to raise money for lupus research, increase awareness of lupus, and rally public support for the estimated 1.5 million Americans who suffer from its brutal impact.
Contact our Chapter office at 317.225.4400 or 800.948.8806 for help getting started in 2017 or for fundraising ideas ~ we are here to help you have your best walk year ever!
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What an exciting year for the Walk to End Lupus Now, Indianapolis!! Teams are already forming and fundraising dollars are already coming in! Don't wait; get registered now and give yourself plenty of time to organize your team and raise much needed funds for our Chapter.
Lupusaurus Rex is still going strong and currently leads all teams in fundraising, and the Lupus Skywalkers team has moved up from 5th to 2nd place! Team Franklin and A Spoon Full of Sugar are working it and have moved up into the top 5 teams, with Bad Ass Butterflies rounding out the final position in the top 5 fundraising teams. Keep up the great work!
Register for the 2017 Indianapolis Walk here
Lemons 4 Lupus!
This past weekend, Ariana and Kelly Farrell hosted their own fundraiser benefiting the Lupus Foundation of America, Indiana Chapter! The two sisters raised $127 by selling fresh lemonade and cookies. We would like to extend a special thank you to these girls and the Farrell family.
Other Third-Party Fundraisers we have going on during Lupus Awareness Month:
Ecollins Photography
308 W. Ventura, Otterbein
$20 of photo session fee will be donated to the got wolf? team participating in the 2017 Indianapolis Walk to End Lupus Now.
For additional information, contact Emily Collins at 765-464-9336 or visit www.ecollinsphotography.com.
Cowboy Monkey - Lit 4 Lupus
6 Taylor St., Champagne, IL.
$5 entry fee, purple-themed drinks, raffle and auction of boxing glove signed by world champion and hall of fame boxer Sugar Shane Mosley.
15% of proceeds to be donated to our Chapter
21+ to enter
Want to hold a unique fundraiser benefiting the Lupus Foundation of America, Indiana Chapter?
To add your event to our website, please complete the Third-Party Fundraiser Application and send to our office.
Phone: 800.948.8806
Email: info@lupusindiana.org
Northwest Indiana! We are seeking planning committee members for our event 'Purple Daze of Fall, Brews and Bites' held on Thursday, October 26th, 6:00 - 9:00 PM. If you are interested, please send a message to info@lupusindiana.org for more details.
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Ask the Experts is a series of live educational teleconferences and pre-recorded web casts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home.
These live teleconferences last one hour and are accessible via a toll-free number. Teleconferences will also be recorded and posted online. Pre-registration is required. Call-in/log-in information will be provided to all registrants one week before the event.
The June 15th topic is Clinical Trials 101, 7:00-8:00 PM, EST. An overview of how clinical trials work, why it is beneficial to participate, and the latest trial focuses on treatments for lupus.
Presenter: Dr. Namieta Janssen, Rheumatologist from Houston, TX
If you missed any of the previous Ask the Experts teleconferences, the recorded sessions and presentations are available on our website.
Learn more or register here.
Educational Symposium - In The Loop
Get in the loop by attending this year's 'In the Loop - Healthy Living with Lupus' educational symposium being provided by our Chapter! This year instead of having several small seminars, we will be having one full-day symposium. Attendees will be able to select topics of interest from morning and afternoon breakout sessions led by national and local professionals.
Date: Saturday, December 9, 2017
Time: 9:30 am -3:45 pm (check-in, continental breakfast and exhibit)
Location: Crowne Plaza Airport, 2501 S. High School Rd. in Indianapolis.
Dr. Susan Manzi, Director, Lupus Center of Excellence and Chair, Department of Medicine Allegheny Health Network .will be our special guest. Also hear from the Indiana State Health Department on the importance of awareness and research for lupus and other health disparities.
Lupus and Mental Health - Judy Schaff, psychotherapist who has lupus
“Despite Lupus: How to Live Well with a Chronic Illness” - Sara Gorman, author who has lupus
Lupus and Healthy Sleep - Dr. Stephanie Jackson, IU Sleep Disorders Center
Gentle Yoga/Tai Chi Session - Pam Glenn/Bonnie Sweeney
Value of Alternative Methods in Dealing with Chronic Disease - Dr. Ralph Waldo, Connected Health Care Systems
Stress Management - Sydney Johnson, CHW, Anthem Indiana Medicaid
Relationships, Emotions and Intimacy - Iris Zink, President, Rheumatology Nurses Society
Energize Me: Diet, Meal Planning and Exercise - Shantay Glover, YMCA Certified Fitness Trainer
How to Advocate - Gary Gibson, President/CEO, Martin Center Sickle Cell Initiative
Lupus and Overlapping Connective Tissue Disease - Dr. Kathleen O’Neil, Chief, Pediatric Rheumatology, Riley Hospital for Children at IU Health
Lupus and Pain Management - TBD
Purchase Tickets - Registration is required by Tues., Dec. 5.
$20/person ticket includes continental breakfast, symposium materials, goodie bag and lunch..
If you will be coming to Indianapolis on Friday evening and require hotel accommodations, a group rate of $139/night is available. The hotel offers an indoor pool and exercise room for guests' enjoyment. To book a hotel room at this rate, visit https://aws.passkey.com/e/49134279 or call 317.244.6861 and ask for reservations department and provide group code "LUP" or tell reservationist that you are with the Lupus Foundation. This group rate is also good for Saturday night, December 9. To ensure room availability and this group rate, reservations must be made by Wednesday, November 8. Blocked rooms held for symposium guests will be released after this date..
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There's no need to leave home to participate in a support group! You can get comfortable and share experiences, methods of coping and insights into living with lupus by participating in our online support group. The online support group meetings are now being held the last Sunday of each month from 6:30-7:30 pm. However, due to the holiday weekend, the May meeting will be held on Sunday, May 21.
Support is only a click away.
To register or learn more click here
LFA License Plates Available
Look what we saw out on the road!
You can order your plate today for an annual $40.00 through myBMV.com, at license branches, and other customer service locations. $25.00 from each LFA, IN license plate sold will come back to our Chapter!
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Governor Eric Holcomb declares May as Lupus Awareness Month in Indiana.
Each year, the Lupus Foundation of America designates May as Lupus Awareness Month to show support for the estimated 1.5 million Americans who have lupus.
Let's make May PURPLE! Help spread awareness during Lupus Awareness month by wearing your purple, lighting your house/local businesses in purple lights. Share your photos on Facebook, Twitter, and Instagram using the hash tags #PutOnPurpleIN or #POPIndiana.
Eli Lilly and Company CoLAB Support
We recently had members of LFA, Indiana Chapter participate in a CoLAB study with Eli Lilly and Company in April.
Lilly is currently investigating 2 molecules for the treatment of systemic lupus erythematosus. People with lupus were encouraged to participate in this CoLAB study. The objective of a CoLab is to improve clinical trials by enabling study teams and external partners (patients, patient advocates, physicians, and study coordinators) to work face-to-face to better understand operational issues within the protocol.
We woud like to thank those from our organization who participated in the CoLAB with our community partner, Eli Lilly and Company. Lilly will be holding another CoLAB in August. Keep an eye out for more details to come.
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Message from our CEO, Morgan McGill 
