|
Now introducing The National Resource Center on Lupus; the one-stop resource center for all things lupus from treatment to living to relationships. The Resource Center is here to support you whether you think you might have lupus, are newly-diagnosed, or living with lupus. The Resource Center aims to empower, educate and connect those whose lives are impacted by this devastating and unpredictable disease by providing trustworthy, reliable, and high-quality resources, programs and emotional support services.
The Resource Center currently has more than 600 medically-reviewed resources in English and Spanish about all aspects of lupus. You can easily find information and resources based on your preference -- by topic, relationship to lupus, category, or keyword search.
Research, educate, and follow the latest news on lupus through the resource center.
|
|
ATA Planning Committee Meeting on Tuesday, March 21, 2017, at 6:00 p.m. at Grace University, 9302 N. Meridian Street, 2nd Floor. Newcomers welcome!!
LFA, Indiana offers Gentle Yoga and Tai Chi classes for people with lupus and one caregiver or support person. The cost is free, but registration for your first class is required.
Watch and Learn about the health benefits of Tai Chi.
Sign up now.
When: Yoga on the 2nd Saturday of each month. Tai Chi on the 4th Saturday. All classes from 11 a.m. - 12 p.m.
Where: IU North Hospital, 11700 N. Meridian Street, Carmel. Learning Centers A & B.
We are so excited that our Indiana Chapter is participating in this year's Walking for Dreams, on May 21, 2017.
Walking for Dreams is an approximately 5K Family and Pet Walk that was started in 2004 to help local Indianapolis non-profit organizations raise needed funds to enable them to do more of what they do so well – serve the youth and families of Indianapolis. For the second year in a row, Walking for Dreams expands to the Evansville area for the 2017 walk!
Walking for Dreams pulls together local organizations to share in a joint fundraiser. Walkers of all ages will join together to support their special organization by raising pledges and participating.
Thanks to the generous sponsorship of local corporations, all checks turned in by the walkers should be made out to your chosen non-profit and will be given directly to the selected organizations and are 100% tax deductible. Learn More!
Our sixth annual A Tasteful Affair fundraiser will be held on June 23, 2017.
On a Friday, summer night, from 6:30 p.m. to 11:00 p.m. at the Ritz Charles on N. Meridian Street. This year's event will include tastings from local restaurants and breweries (must be 21 to come), as well as our awesome silent and live auctions, and music to dance to from The Bishops! You're not going to want to miss this.
* We are still looking for auction items valued at least $100, as well as 90 points or better wine for the wine pull for A Tasteful Affair. If you or your company can help, please contact Lisa@lupusindiana.org. Thank you!
LFA, Indiana Offers Statewide Support Groups
The philosophy of LFA support groups is to provide a warm and caring environment where people with lupus, their family members, caregivers, and loved ones can share their experiences, methods of coping, and insights into living with lupus. LFA support groups encourage and accept people as they are and provide a comfortable learning environment to help them develop the best coping strategies to reduce stress that often accompanies living with a chronic illness. The Lupus Foundation of America, Indiana Chapter is fortunate to have professionally-trained volunteers to offer support to lupus patients, friends, and family members throughout the state .
For more support group information in your area, click here.
|
What an exciting year for the Walk to End Lupus Now,Indianapolis!! Teams are already forming and fundraising dollars are already coming in! Don't wait; get registered now and give yourself plenty of time to organize your team and raise much needed funds for our Chapter.
NEW in 2017 - register online by May 1st and choose to immediately donate $25 and you will receive an EARLY BIRD Tshirt on Walk day! The Early Bird Tshirt will have the exact design of this year's Club 100 shirt but will be gray and will not have the Club 100 designation on the sleeve. This shirt will be in addition to the other shirts also available - remember, all shirts are individually earned!
Register for the 2017 Indianapolis Walk here
|
Ask the Experts is a series of live educational teleconferences and pre-recorded webcasts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home.
These live tele-conferences last one hour and are accessible via a toll-free number. Teleconferences will also be recorded and posted online. Pre-registration is required. Call-in/log-in information will be provided to all registrants one week before the event.
The March 22nd topic is Working with Your Pharmacist.. Please join us via telephone and help us spread the word to others with lupus.
Learn more or register here.
|
|
The LFA, IN chapter ONLINE support group is off to a great start. With no need to leave home, you can get comfortable and share experiences, methods of coping and insights into living with lupus. Get answers to your questions, and find the support you're looking for.
The online support group meetings will be held the last Friday of each month from 6:30-7:30 pm. The next meeting will be on March 31, 2017.
To comply with national LFA requirements, a New Member Registration Form (NMRF) must be on file and returned to facilitators prior to participating in your first meeting.
So climb into a comfy spot with your laptop the fourth Friday of each month, and surround yourself with people who care and understand what you're going through. Support is only a click away.
To register or learn more click here
LFA License Plates Available
Look what we saw out on the road!
You can order your plate today for an annual $40.00 through myBMV.com, at license branches, and other customer service locations. $25.00 from each LFA, IN license plate sold will come back to our Chapter!
|
Sometimes we meet someone who makes our own challenges look small by comparison, and sometimes we meet someone whose energy and optimism takes our breath away; but rarely are these traits shared in one person, as they are in Brandi Fabel.
Despite her ongoing battle with lupus, Sjogren's, and Reynaud’s disease, she continues to lead and support others in LFA, Indiana Chapter’s new online lupus support group, and she is eager to advocate for herself others like her at the National Policy Summit this summer in Washington D.C.
The two-day Summit will address critical issues in lupus research, education and public policy. This year's meeting brings together leaders from key federal health and regulatory agencies, academic research, the private sector, and patient advocates for focused discussions on critical issues in lupus.
On day two, Brandi and other advocates will take this information to policymakers on Capitol Hill asking Members of Congress to increase federal funding for lupus research and constructive public policies to support all people affected by lupus.
Please support Brandi’s efforts to go to Washington to make the impact that we all know that she can make. You can contribute to her Washington trip here (this will go toward transportation, lodging and meals). And thank you for making a difference! https://www.gofundme.com/3ft9t68
Read Brandi’s story here: http://www.lupus.org/indiana/news/entry/like-you-brandi-fabel
For more information on the National Policy Summit in Washington, D.C. visit: http://www.lupus.org/pages/national-public-policy-summit-on-lupus
|
