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| July 2022 |
| Message From CEO Brian Rothenberger |
| Hello, friends and supporters! I’m approaching one month in my new role and while it’s been challenging, I am meeting some wonderful people and beginning to feel a sense of community with those in our area who are passionate about helping others living with lupus. This gives me hope and purpose and gets me into the office early every day. July is exciting for us, with the “Faces of Lupus” Fashion Show coming up on the 23rd and plans for our annual Walk heating up (October 8th). Please see below for a link to find details on the Fashion Show and purchase tickets. We look forward to seeing you there! Our Chapter exists to serve and support everyone in the state of Indiana impacted by lupus, and I am committed to developing, maintaining, and increasing access to resources…but I need your help. I need to know what resources you find valuable, and how we can best connect you to them. Also, what can we be doing to serve you better? What is it that you need from us to help improve the quality of your life? I will be reaching out to many of you to ask these questions and more. In the meantime, if you feel compelled to share your thoughts and ideas – the good, the bad, and the ugly – please reach out to me directly at 317.225.4400 or brian@lupusindiana.org. I would love to hear from you. Together, we can make an impact on ALL Hoosiers living with lupus. Please join us in doing just that. Warm Regards, -Brian |
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| It's not too late yet but you're running out of time to get your tickets for this year's Faces of Lupus Fashion Show being held on Sat, July 23rd! The deadline to buy tickets is Thur, July 14th, so less than a week remains! This annual fundraising event is an afternoon of fun featuring 30 beautiful and handsome models, all of whom have lupus or are a healthcare provider to people with lupus. Net proceeds from this event benefit our Chapter's Patient Access to Healthcare (PATH) program, providing emergency assistance to Hoosiers who are battling lupus. Learn more and buy tickets
If you're interested in being a volunteer at the Fashion Show, please contact Carla Day. |
| Methotrexate |
| Methotrexate is an important part of lupus care. We are aware of reports that some people are having difficulty accessing methotrexate in the wake of the Supreme Court’s ruling in the Dobbs case. The health of all people with lupus is of utmost importance to the Lupus Foundation of America. We are working with our Medical-Scientific Advisory Council to guide our efforts going forward so we can help ensure that people with lupus have access to the treatments they need. If you are a person with lupus experiencing challenges accessing methotrexate, please email access@lupus.org with details of your experience. |
| Mark Your Calendars |
| UPCOMING ANNUAL EVENTS: July 23 - Faces of Lupus Fashion Show October 8 - Walk to End Lupus Now Download the 2022 Timeline of Events RECURRING EVENTS: 'Let's Talk About It' Webinar Series (Monthly) Support Group Meetings (Monthly) Gentle Yoga Facebook Live (Bi-Monthly) Mindful Meditation Facebook (Monthly) |
| Serve on the LFA-IN Chapter Board of Directors |
| Our LFA-IN Chapter is seeking qualified candidates to serve on our Board of Directors. Our continued success depends on the personal commitment and active involvement of a select group of elected individuals who embrace the privilege to serve and the responsibility to lead. Board members are expected to be zealous advocates on our behalf, enthusiastic communicators of our mission and vision, aspire to the growth of our organization, and play an integral role in our leadership development and fundraising activities. Board Expectations Submit Application |
| Sun Protection |
| Make sure you have everything you need to protect yourself from the suns rays to help prevent a lupus flare. Check out these resources: 5 Need-to-Know Facts About Sun Safety 10 Wearable Ways to Protect Yourself Outdoors What You Don't Know About Sunscreen, But Should UV Exposure: What You Need to Know |
| Event Planning Committee Members and Volunteers Needed |
| The planning committee for our 2022 Walk to End Lupus Now is now forming! If you or someone you know is interested in planning and implementing the Walk or being a day-of volunteer for the Walk and Faces of Lupus Fashion Show, please email brian@lupusindiana.org. |
| Connect With Us Via Text! |
| Simply text the keyword “lfaindiana” to 50155 to get notifications and updates via text. It’s quick, easy and a great way to stay connected. |
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| Our Chapter offers the Patient Access to Healthcare (PATH) program for people in Indiana living with lupus to assist with the most crucial needs that can't be met through other community resources. The following goods and services are eligible for subsidy through PATH: •Emergency prescriptions •Medical appointment •Lab work •Durable medical equipment •Transportation to or from a medical appointment •Emergency utilities (water, electric, gas) •Emergency rent/housing. PATH Recipient Chanel Barrett Video Check out PATH if you need resources. We are here to help! |
| Lupus Podcasts |
| For those of you who like to consume information by listening rather than reading, here are a couple of podcasts related to lupus that you may find of interest. Please let us know what you think and share others that you have come across! Email info@lupusindiana.org. Lupus: The Expert Series (Lupus Foundation of America) - https://www.lupus.org/resources/lupus-the-expert-series: This is an educational podcast series featuring leading lupus experts with a focus on helping you live well with lupus. The Lupus Living Podcast (Gwen S. Alexander) - https://podcasts.apple.com/us/podcast/the-lupus-living-podcast/id1445263792: The Lupus Living Podcast will inspire you to keep going through the challenges of living with lupus. Gwen Alexander, your host, was diagnosed with lupus after several emergency room visits and hospital stays. She has had to make many changes to her life since her diagnosis and has been on a journey of making changes that help her live a full life despite having lupus. Follow her podcast to learn how to navigate the flare ups of living with lupus. |
| We would like to shine a light on our Facebook Fundraising Stars for the month of June who raised $345! Thank you to those who fundraise for and donate to our Chapter; we truly appreciate your support. Head to our Facebook page to donate or start your own fundraiser!
Learn how to start your own Facebook Fundraiser |
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| Make Your Mark is the community fundraising program of the Lupus Foundation of America. Each year, hundreds of Make Your Mark members organize unique events and athletic feats that raise money to fight lupus. Use your passion to raise funds for lupus through a local event, special occasion, athletic competition or whatever you have in mind. More Information |
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 Lupus Foundation of America, Indiana Chapter 9302 N. Meridian Street, Suite 203 Indianapolis, Indiana 46260 Phone: 317.225.4400 | info@lupusindiana.org Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy. |
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