|
| April 2022 | ||||||
 |
||||||
| Celebrate Lupus Awareness Month in style by joining us for the Lace Up for Lupus Gala! This will be a night of elegance and fun in semi-formal attire and tennis shoes to raise funds to provide multi-level support to people with lupus in Indiana, as we continuously seek a cure. The Lace up For Lupus Gala will be a memorable evening with a meaningful mission in a beautiful atmosphere at the Indianapolis Artsgarden. The night will include a four-course dinner, cash bar with two complimentary drinks, short program, great silent and live auction items to bid on with mobile bidding, raffle prizes, wine pull, a photo booth to capture your memories, and more! Deadline to purchase tickets is Sunday, May 1. Learn more and purchase tickets Thank you to our Community Partners and Gala sponsors for making this fun event possible!
|
||||||
 |
||||||
| Don't miss this month's 'Let's Talk About It' webinar being held on Tuesday, April 19th, from 7:00-8:00 pm EST. 'Let's Talk About It' is a series of live educational webinars designed to provide you with important information about living with lupus. Don't miss this opportunity to learn important information about living with lupus from the comfort of your home! In recognition of April being Minority Health Month, the topic of April's session is Lupus & Disparities. It is well known that racial disparities exist and are a persistent challenge in healthcare. Lupus disproportionately impacts people of color and patients tend to have higher disease severity, accelerated damage, and worse outcomes. What can be done to help bridge the divide? The reasons and solutions are complex. Join Dr. Ashira Blazer as she discusses the impact disparities have on lupus. Learn more and register |
||||||
| Aurinia ALL IN™ Program |
||||||
| If you or a loved one is living with lupus nephritis, an inflammation of the kidneys caused by lupus, you know first-hand that the condition is not widely recognized or understood. This may leave you feeling isolated and in need of answers. The ALL IN™ program is an important source of information, support, and resources to empower people living with lupus to have conversations with their doctor about lupus nephritis. Whether you or your care partner want information to help with the lupus nephritis diagnosis or resources, information and tips throughout the lupus nephritis journey, ALL IN is here to support you. For more information about lupus nephritis visit www.allinforln.com. To join the ALL IN™ community and receive your LN Awareness Kit visit https://www.allinforlupusnephritis.com/register.
|
||||||
 |
||||||
| We'd love to learn and share how our Chapter has impacted your life or a family member's life. Please send your stories (250 words or less) and a photo headshot and we'll share in our eNewsletter, website and social media. Send your story |
||||||
| Mark Your Calendars | ||||||
| ANNUAL EVENTS: May 13 - Lace Up for Lupus Gala at Indianapolis Artsgarden June 26-28 - National Lupus Advocacy Summit in Washington DC July 23 - Faces of Lupus Fashion Show October 8 - Walk to End Lupus Now Download the 2022 Timeline of Events RECURRING EVENTS: 'Let's Talk About It' Webinar Series (Monthly) Support Group Meetings (Monthly) Gentle Yoga Facebook Live (Bi-Monthly) Mindful Meditation Facebook (Monthly) |
||||||
| Heart Health Management in People with Lupus | ||||||
| New research by Lupus Foundation of America Gina M. Finzi Memorial Fellowship Awardee Megan Zhao shows that people with systemic lupus erythematosus (SLE) or cutaneous lupus erythematosus (CLE) are at notably high risk of atherosclerotic cardiovascular disease (ASCVD), a form of heart disease, yet largely aren’t receiving key treatments to help lower their heart disease risk. Learn More There's been a lot of lupus news shared recently by the LFA. To access, visit https://www.lupus.org/indiana/news-events. |
||||||
| Connect With Us Via Text! | ||||||
| Simply text the keyword “lfaindiana” to 50155 to get notifications and updates via text. It’s quick, easy and a great way to stay connected. |
||||||
| Event Planning Committee Members and Volunteers Needed | ||||||
| Planning committees for our 2022 Faces of Lupus Fashion Show and Walk to End Lupus Now are now forming! If you or someone you know is interested in planning and implementing these events or being a day-of volunteer for these events and the Lace Up for Lupus Gala, please reach out to Damiah Woodmore. |
||||||
 |
||||||
Looking for someone who can provide support and assistance to overcome the barriers that come along with lupus? That’s what our patient navigators do! The Lupus Foundation of America, Indiana Chapter is a recipient of Aurinia Pharmaceuticals’ coveted patient navigation program grant, creating better ways to support Hoosiers with lupus, with a special focus on lupus nephritis. Services this program will provide include: •One-on-one appointments with a patient navigator •Assistance with transportation to medical appointments via Uber Health •Vouchers for co-pays •Vouchers for prescription costs •Free access to written resources •Free access to research papers and updates. Learn more about the Patient Navigator Program |
||||||
 |
||||||
| Our Chapter offers the Patient Access to Healthcare (PATH) program for people in Indiana living with lupus to assist with the most crucial needs that can't be met through other community resources. If you live in Lake County, we have special funding available to you made possible by the Crown Point Community Foundation. The following goods and services are eligible for subsidy through PATH: • Emergency prescriptions • Medical appointment • Lab work • Durable medical equipment • Transportation to or from a medical appointment • Emergency utilities (water, electric, gas) • Emergency rent/housing. Check out PATH if you need resources. We're here to help! |
||||||
| We would like to shine a light on our Facebook Fundraising Stars for the month of March who raised $625! Thank you to those who fundraise for and donate to our Chapter; we truly appreciate your support. Head to our Facebook page to donate or start your own fundraiser!
Learn how to start your own Facebook Fundraiser |
||||||
| PhD Nursing Student Wants to Hear From You! | ||||||
| Danielle Short is a PhD student at the Indiana University School of Nursing. Lupus has had a significant impact on her life. Her personal experiences are the driving and inspiring force behind her decision to focus her research on improving the quality of life and health-related outcomes among those with SLE. As she continues her research, she would greatly appreciate the opportunity to hear from you, as your input will be invaluable in her research. If you are interested, please contact Danielle at shortdn@iu.edu. |
||||||
 |
||||||
| Make Your Mark is the community fundraising program of the Lupus Foundation of America. Each year, hundreds of Make Your Mark members organize unique events and athletic feats that raise money to fight lupus. Use your passion to raise funds for lupus through a local event, special occasion, athletic competition or whatever you have in mind. More Information |
|
|
|
 Lupus Foundation of America, Indiana Chapter 9302 N. Meridian Street, Suite 203 Indianapolis, Indiana 46260 Phone: 317.225.4400 | info@lupusindiana.org Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy. |
|||||
|
|
||||
|
|||||
| You are receiving this email because you are subscribed to updates from the Lupus Foundation of America, Indiana Chapter. Modify your subscriptions | Unsubscribe |
|||||
