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| March 2022 |
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| Time is running out to register for the annual 'In the Loop - Healthy Living with Lupus' symposium being held on Saturday, March 26th - registration deadline is Sunday, March 13th! We still have a small amount of scholarships available for those who need help paying for their ticket. Topics for this year's symposium include Lupus Living-The Importance of Proper Nutrition, Lupus and Pregnancy, Teens Living With Lupus, Caregiver Conversation, Bringing the Fight to Lupus Nephritis: An Introduction to LUPKYNIS™ (Voclosporin), The Mind-Body Connection...The Power You Have to Create A Safe Space For Your Body to Heal, Secret Weapon to Getting Organized, and Prescription Medicine Costs in Context. There will be a plated lunch, exhibitors, lupus merchandise for sale, and time for socializing. Learn more and register |
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| Don't miss this month's 'Let's Talk About It' webinar being held on Wednesday, March 9th, from 7:00-8:00 pm EST. 'Let's Talk About It' is a series of live educational webinars designed to provide you with important information about living with lupus. Don't miss this opportunity to learn important information about living with lupus from the comfort of your home! The topic of March's session is Lupus Employment Issues in the Workplace. Join Ann B. Plunkett, human resources attorney and president of WorkPlace Partners, Inc. , for this important webinar to help you understand the Family annd Medical Leave Act (FMLA) and the Americans with Disabilities Act (ADA), and how to work with your employer to put together a plan to prioritize your health issues and determine the types of accommodations you may need. Learn more and register |
Welcome Stephen Willhite! |
| We're excited to share that Stephen Willhite has joined our Chapter as a part-time development associate. In this new role, Stephen will help identify funding opportunities, write and edit grant proposals, and assist with event planning. Stephen was born and raised in Louisville, Kentucky, but has been living primarily in Latin America for the majority of the last 10 years working in tourism and hospitality. For many years he lived in Bogotá, Colombia, and considers it a second home. Before working in the tourism and hospitality sector, he worked in civil litigation, business development and consulting. Stephen is fluent in Spanish and loves to travel, experience new cultures, foods, literature, music and dance. Living an active and healthy lifestyle is extremely important to him and is he currently building several international brands along those lines with business associates in Colombia and Mexico. Stephen is a first-generation high school and college graduate on both sides of his family and graduated from the University of Kentucky (Business Management), the University of Louisville (Spanish), and Chase Law of Northern Kentucky University. |
| Lupus Featured on Bel-Air Television Series |
| This month Peacock launched the television drama, Bel-Air, a remake of the 90's sitcom The Fresh Prince of Bel-Air. During the March 3rd episode, the story tied to Aunt Viv who lost a friend to lupus and hosts a fundraiser in her friend's honor. We're excited that the Lupus Foundation of America provided collateral materials used in the show and worked with the show to create a promotional slate at the end of the show directing people to the Lupus Foundation of America to learn more about lupus. |
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There are just a few weeks remaining for high school seniors and current college students to apply for the $1000 Marlene Stepanek Lupus Legacy Scholarship! Marlene was diagnosed with lupus in 1970 and lost her battle with the disease in 1977. Marlene valued education and her husband, Fred, hopes this scholarship in her honor will help a high school senior find their education dream. Learn more |
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| We'd love to learn and share how our Chapter has impacted your life or a family member's life. Please send your stories (250 words or less) and a photo headshot and we'll share in our eNewsletter, website and social media. Send your story |
| Mark Your Calendars |
| ANNUAL EVENTS: March 26 - In the Loop - Healthy Living with Lupus Symposium May 13 - Lace Up for Lupus Gala at Indianapolis Artsgarden June 26-28 - National Lupus Advocacy Summit in Washington DC July 23 - Faces of Lupus Fashion Show October 8 - Walk to End Lupus Now Download the 2022 Timeline of Events RECURRING EVENTS: 'Let's Talk About It' Webinar Series (Monthly) Support Group Meetings (Monthly) Gentle Yoga Facebook Live (Bi-Monthly) Mindful Meditation Facebook (Monthly) |
| Connect With Us Via Text! |
| Simply text the keyword “lfaindiana” to 50155 to get notifications and updates via text. It’s quick, easy and a great way to stay connected. |
| Event Planning Committee Members and Volunteers Needed |
| Planning committees for our 2022 Faces of Lupus Fashion Show and Walk to End Lupus Now are now forming! If you or someone you know is interested in planning and implementing these events or being a day-of volunteer for these events and the Lace Up for Lupus Gala, please reach out to La Toija Snodgrass. |
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Looking for someone who can provide support and assistance to overcome the barriers that come along with lupus? That’s what our patient navigators do! The Lupus Foundation of America, Indiana Chapter is a recipient of Aurinia Pharmaceuticals’ coveted patient navigation program grant, creating better ways to support Hoosiers with lupus, with a special focus on lupus nephritis. Services this program will provide include: •One-on-one appointments with a patient navigator •Assistance with transportation to medical appointments via Uber Health •Vouchers for co-pays •Vouchers for prescription costs •Free access to written resources •Free access to research papers and updates. Learn more about the Patient Navigator Program |
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| Our Chapter offers the Patient Access to Healthcare (PATH) program for people in Indiana living with lupus to assist with the most crucial needs that can't be met through other community resources. If you live in Lake County, we have special funding available to you made possible by the Crown Point Community Foundation. The following goods and services are eligible for subsidy through PATH: • Emergency prescriptions • Medical appointment • Lab work • Durable medical equipment • Transportation to or from a medical appointment • Emergency utilities (water, electric, gas) • Emergency rent/housing. Check out PATH if you need resources. We're here to help! |
| We would like to shine a light on our Facebook Fundraising Stars for the month of February who raised $150! Thank you to those who fundraise for and donate to our Chapter; we truly appreciate your support. Head to our Facebook page to donate or start your own fundraiser!
Learn how to start your own Facebook Fundraiser |
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 Lupus Foundation of America, Indiana Chapter 9302 N. Meridian Street, Suite 203 Indianapolis, Indiana 46260 Phone: 317.225.4400 | info@lupusindiana.org Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy. |
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