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| February 2022 |
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| Our annual 'In the Loop - Healthy Living with Lupus' symposium will be held on Saturday, March 26. Don't miss out on purchasing early bird tickets that are available through Sunday, February 20. Topics for this year's symposium include Lupus Living-The Importance of Proper Nutrition, Lupus and Pregnancy, Teens Living With Lupus, Caregiver Conversation, Bringing the Fight to Lupus Nephritis: An Introduction to LUPKYNIS™ (Voclosporin), The Mind-Body Connection...The Power You Have to Create A Safe Space For Your Body to Heal, and Secret Weapon to Getting Organized. There will be a plated lunch, exhibitors, lupus merchandise for sale, and time for socializing. Learn more and register |
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| No matter how long you’ve been living with lupus, the SELF online self-management program has the tips and tools to help you better manage your disease. Launched in January, this new online self-management program is designed to help people with lupus build and enhance skills in four pillars of lupus self-management: managing symptoms, managing stress, managing medications and working with their healthcare team. SELF is the first and only online self-management program tailored to the specific needs of a person living with lupus, and it was developed by the LFA with guidance from people with lupus, their doctors, behavior change scientists and other experts. Learn more |
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| Don't miss this month's 'Let's Talk About It' webinar being held on Tuesday, February 8th, from 7:00-8:00 pm EST. 'Let's Talk About It' is a series of live educational webinars designed to provide you with important information about living with lupus. Don't miss this opportunity to learn important information about living with lupus from the comfort of your home! The topic of February's session is Lupus and the Skin. Join us as we learn from Dr. Victoria Werth, Professor of Dermatology and Medicine at the University of Pennsylvania School of Medicine and Chief of the Division of Dermatology at the Philadelphia Veterans Administration Hospital, as she walks us through photoprotection, treatment of skin lupus and new therapies on the horizon for skin lupus. Learn More and Register |
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High school seniors are encouraged to apply for the $1000 Marlene Stepanek Lupus Legacy Scholarship! Marlene was diagnosed with lupus in 1970 and lost her battle with the disease in 1977. Marlene valued education and her husband, Fred, hopes this scholarship in her honor will help a high school senior find their education dream. Learn more |
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| We'd love to learn and share how our Chapter has impacted your life or a family member's life. Please send your stories (250 words or less) and a photo headshot and we'll share in our eNewsletter, website and social media. Send your story |
| Mark Your Calendars |
| ANNUAL EVENTS: March 26 - In the Loop - Healthy Living with Lupus Symposium May 13 - Lace Up for Lupus Gala at Indianapolis Artsgarden June 26-28 - National Lupus Advocacy Summit in Washington DC July 23 - Faces of Lupus Fashion Show October 8 - Walk to End Lupus Now Download the 2022 Timeline of Events RECURRING EVENTS: 'Let's Talk About It' Webinar Series (Monthly) Support Group Meetings (Monthly) Gentle Yoga Facebook Live (Bi-Monthly) Mindful Meditation Facebook (Monthly) |
| Connect With Us Via Text! |
| Simply text the keyword “lfaindiana” to 50155 to get notifications and updates via text. It’s quick, easy and a great way to stay connected. |
| Gala, Fashion Show and Walk Planning Committee Members and Volunteers Needed |
| Planning committees for our 2022 Gala, Fashion Show, and Walk to End Lupus Now are now forming! If you or someone you know is interested in planning and implementing or volunteering for these three very important events for our Chapter, please reach out to La Toija Snodgrass. |
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Looking for someone who can provide support and assistance to overcome the barriers that come along with lupus? That’s what our patient navigators do! The Lupus Foundation of America, Indiana Chapter is a recipient of Aurinia Pharmaceuticals’ coveted patient navigation program grant, creating better ways to support Hoosiers with lupus, with a special focus on lupus nephritis. Services this program will provide include: •One-on-one appointments with a patient navigator •Assistance with transportation to medical appointments via Uber Health •Vouchers for co-pays •Vouchers for prescription costs •Free access to written resources •Free access to research papers and updates. Learn More About the Patient Navigator Program |
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| Our Chapter offers the Patient Access to Healthcare (PATH) program for people in Indiana living with lupus to assist with the most crucial needs that can't be met through other community resources. If you live in Lake County, we have special funding available to you made possible by the Crown Point Community Foundation. The following goods and services are eligible for subsidy through PATH: • Emergency prescriptions • Medical appointment • Lab work • Durable medical equipment • Transportation to or from a medical appointment • Emergency utilities (water, electric, gas) • Emergency rent/housing. Check out PATH if you need resources. We're here to help! |
| We would like to shine a light on our Facebook Fundraising Stars for the month of January who raised $515! Thank you to those who fundraise for and donate to our Chapter; we truly appreciate your support. Head to our Facebook page to donate or start your own fundraiser!
Learn how to start your own Facebook Fundraiser |
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 Lupus Foundation of America, Indiana Chapter 9302 N. Meridian Street, Suite 203 Indianapolis, Indiana 46260 Phone: 317.225.4400 | info@lupusindiana.org Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy. |
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