We are devoted to solving the mystery of lupus, one of the world's cruelest, most unpredictable, and devastating diseases, while giving caring support to those who suffer from its brutal impact.

Navigating the Pediatric Lupus Journey Webinar Series :Pediatric Lupus: What to Expect

Navigating the Pediatric Lupus Journey Webinar Series
Lupus can affect both adults and children. Childhood lupus represents approximately 20% of lupus patients, affecting about ten out of one million children per year. Caring for a child or teen with lupus requires knowledge, patience, and acceptance that certain lifestyle changes will need to be made. 
This four-part webinar series is designed to help parents understand lupus and how to care for a child or teen with the disease. Parents and children will learn how to work together to manage symptoms, maintain a healthy lifestyle, and successfully transition to adulthood. 
Part 1 - Pediatric Lupus: What to Expect 
 September 24, 2020 | 7:30 p.m. (EST)  
This webinar is designed for parent(s)/guardians of newly diagnosed children or teens with lupus or those needing more information. The webinar will feature an overview of lupus with Jon (Sandy) Burnham, MD, MSCE, Clinical Director of the Division of Rheumatology, Director of the Lupus Program and Co-Director of the Lupus Integrated Nephritis Clinic at Children's Hospital of Philadelphia and a panel discussion that includes Dr. Burnham, a psychologist and parents of children with lupus.  
Topics include: 
  • Overview of lupus Treatments and side effects
  • Working with your child to take medications consistently 
  • Understanding doctor’s visits 
  • How to help you and your child cope with the diagnosis

Time: 7:30 PM - 8:30 PM

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